Emily Johnson is a mom of 2, married 13 years, owns a hot yoga studio, and is a registered nurse. As if that wasn’t enough, she then went on to get a degree as a family nurse practitioner - amazing!
When asked how Emily does it all she says that she has learned over the years to ask for help and has a lot of support. She says that she was never comfortable asking for help as a little girl growing up. She thought that it was a sign of weakness. She now realizes that this is not true at all.
Emily’s son Miles in 2020 got off the school bus and she didn’t recognize him. He had become a different child and it was devastating for Emily. It took months to get a proper diagnosis as many of these children are misdiagnosed with a cornucopia, an alphabet soup, of ADHD, autism, anxiety, tics and Tourettes.
PANS (Pediatric Acute-onset Neuropsychiatric Syndromes) and PANDAS (Pediatric Autoimmune Neuropsychiatric Disorders Associated with Streptococcal Infections) Emily's son had multiple strep infections, and those infections caused an immune response in the body, which is normal. Still, with PANDAS, it is a misdirected response, and in the blood, antibodies are created. These antibodies create inflammation in the body and the brain.
Emily created the PANS Party Project this year. You can find them on Facebook if you are a parent in need of support. Most parents can identify the exact time where their child changed overnight. It’s essential not to be consumed by our grief. Acknowledge it, and purposefully use your pain.
Be sure to follow and listen to find if there is a cure for PANS & PANDAS. If you are struggling with a diagnosis of PANS or PANDAS, make sure that you find the group on Facebook or click here.
Ways to connect with us:
YouTube - Whisk it with flAVA
Special Thanks To:
Rob Actis - For gifting The KAM Project Branding
Dan Lipton - For composing KAMcastKIDS & KAMcast music
Sara Mann - For KAMcastKIDS & KAMcast voiceovers
Leah Bryant - Podcast Producer/Virtual Assistant
Social Media Tags:
PANS Party Project