KAMcast
KAMcast
May 6, 2021
Turning A Diagnosis Into A Movement With Emily Johnson
Play • 42 min

Emily Johnson is a mom of 2, married 13 years, owns a hot yoga studio, and a registered nurse. As if that wasn’t enough, she then went on to get a degree as a family nurse practitioner - amazing!

When asked how Emily does it all, she says that she has learned to ask for help and has a lot of support over the years. She says that she was never comfortable asking for help as a little girl growing up. She thought that it was a sign of weakness. She now realizes that this is not true at all. 

Emily’s son Miles in 2020 got off the school bus, and she didn’t recognize him. He had become a different child, and it was devastating for Emily. It took months to get a proper diagnosis as many of these children are misdiagnosed with a cornucopia, an alphabet soup, of ADHD, autism, anxiety, tics, and Tourettes. 

PANS (Pediatric Acute-onset Neuropsychiatric Syndromes) and PANDAS (Pediatric Autoimmune Neuropsychiatric Disorders Associated with Streptococcal Infections) Emily's son had multiple strep infections, and those infections caused an immune response in the body, which is normal. Still, with PANDAS, it is a misdirected response, and in the blood, antibodies are created. These antibodies create inflammation in the body and the brain.

Emily created the PANS Party Project this year. You can find them on Facebook if you are a parent in need of support. Most parents can identify the exact time where their child changed overnight. It’s essential not to be consumed by our grief. Acknowledge it, and purposefully use your pain.  

Be sure to follow and listen to find if there is a cure for PANS & PANDAS. If you are struggling with a diagnosis of PANS or PANDAS, make sure that you find the group on Facebook or click here

Check out the Resilience Naturopathic and #ResilientMoms if you on Peloton!
 

Ways to connect with us:

Website 

Instagram 

@TheKAMProjectorg    @actionistalive    @whiskitwithflava 

YouTube - Whisk it with flAVA

 

Special Thanks To:

Rob Actis - For gifting The KAM Project Branding

Dan Lipton - For composing KAMcastKIDS & KAMcast music

Sara Mann - For KAMcastKIDS & KAMcast voiceovers 

Leah Bryant - Podcast Producer/Virtual Assistant

 

Social Media Tags:

@actionistalive

@whiskitwithflava

@thekamprojectorg

@emilyjohnsonrn

@michelleducie 

@Leah_bryant_co 

@elonmusk 
 

Clubhouse:

@actionistalive

@emilyjohnsonrn
 

Hashtags:

#thekamproject

#actionistalive

#whiskitwithflava

#thepanspartyproject
 

Mentions:

PANS Party Project

Elon Musk

Peloton


 

More episodes
Search
Clear search
Close search
Google apps
Main menu