Living with Lupus
Play • 32 min

This week, the Institute for Clinical and Economic Review (ICER) deliberates the fate of insurance coverage for patients with lupus. 

In this episode, Mollee Huffman shares her diagnosis of lupus, how it impacted her Navy career and day-to-day life. 

Plus, Terry and Dr. Bob look at how hospitals are making it impossible for patients to Google search their prices, drug pricing legislation in Congress (H.R. 3), and what ICER’s poor track record for undervaluing drugs signals to the lupus community awaiting their review.

Guest:

Mollee Huffman

Chronic Illness Advocate and Patient

Links:

Mollee Huffman

ICER’s Lupus Nephritis Public Meeting (3/26)

Hospitals Hide Pricing Data From Search Results

States are Eyeing Public Option Health Plans. Many Obstacles Stand in the Way. 

House Passes Bill That Would Extend Medicare Sequester Cuts Until December

Drug Pricing, Climate, Immigration: House Dems Eye ‘Kitchen Sink’ for Next Big Bill

ICYMI: Last Word: ICER’s flawed pricing recommendations for new high cholesterol treatments

Patient Correspondent: Megan Staley

Patients Rising Concierge 

Need help?

The successful patient is one who can get what they need when they need it. We all know insurance slows us down, so why not take matters into your own hands. Our Navigator is an online tool that allows you to search a massive network of health-related resources using your zip code so you get local results. Get proactive and become a more successful patient right now at PatientsRisingConcierge.org

Have a question or comment about the show, want to suggest a show topic or share your story as a patient correspondent?

Drop us a line: podcast@patientsrising.org

The views and opinions expressed herein are those of the guest(s)/ author(s) and do not reflect the official policy or position of Patients Rising.

More episodes
Search
Clear search
Close search
Google apps
Main menu