Raising Rare
Raising Rare
May 1, 2021
Nicole Horvath: A Life of Outliving Cystic Fibrosis Expectations
Play • 31 min

When Nicole Horvath was born, she had a terminal disease, and no one knew it. If they had known, they would have given her only 18 years to live. 

When she was 20, she had to drop out of college because she was showing severe symptoms. This is when she finally got a diagnosis of cystic fibrosis (CF). At that time, all they good do was use physical therapy and nebulizer treatments to loosen up the mucous in her lungs. The goal was to reduce the number of infections. Luckily, the life expectancy for CF had increased to 32 years.  

Ten years later, she learned about a clinical trial and began a routine of traveling across the country to get experimental treatments.  And this is when her life began to change… miraculously.

Please tune in to our occasional series “The Other End of the Tunnel” and hear Nicole’s story about living in that tunnel.  

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