WCG Institute Podcast: Pioneers of Clinical Research
An Inside Look at Angelman Syndrome Rare Disease: An Interview with Amanda Moore
Jan 13, 2020 · 19 min
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In this episode, Amanda Moore, CEO of Angelman Syndrome Foundation speaks with Steve Smith, WCG’s President of Patient Advocacy. As a mom whose son has been diagnosed with Angelman Syndrome - a rare neuro-genetic disorder that affects 1 in 15,000 children - Amanda walks through the time from receiving initial diagnosis to the odyssey of her son’s patient journey in therapy and clinical trials.

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