On Time: A Parkinson's Podcast
Brian Grant Foundation
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On Time is a podcast about living with Parkinson's disease (PD). People in the Parkinson's community share their candid stories of daily living with the disease. In its fourth season, host Amber Hesford speaks with Brian Grant and other guests about how they experience their PD. Topics include eating, issues specific to women, what others say to those with Parkinson’s, and what people with PD don’t often talk about. The podcast is a program of the Brian Grant Foundation. Learn more about the Brian Grant Foundation at briangrant.org.
Available episodes
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Oldest first
Nov 24, 2023
Things We Don't Often Talk About
People living with Parkinson’s have different comfort levels when talking to others about symptoms they experience. In this episode, Amber wraps up our series with founder Brian Grant covering topics from cringe-worthy social moments to declines in abilities that are tough to face.
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Nov 17, 2023
Things That People Say
Even the most sensitive people can say insensitive things to people living with Parkinson’s disease. In this episode, Amber speaks with Kamal Julka about the comments they have encountered from the most unexpected sources - from strangers at the store to family and friends.
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Nov 10, 2023
Things that Women Deal With
Women with Parkinson’s experience the disease differently than men, and we know so little about why that is. What we do know is there are societal expectations for women, and they are even more complex for women who have PD. In this episode, Amber talks to friend and Parkinson’s advocate, Esther Labib-Kiyarash, about the emotional, social, and physical experience for women with PD.
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Nov 3, 2023
Things That Affect Eating
From tremors and slowness to changes in sense of smell and taste, those living with Parkinson's face several hurdles when it comes eating. In this episode, Amber speaks with founder Brian Grant about eating - from fears about swallowing to awkward social situations.
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Jun 22, 2023
India
This year India’s population surpassed the population of China. In this episode, Dr. Soania Mathur speaks with Dr. Maria Barretto about the experiences of people with Parkinson's in the world’s most populous country.
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Jun 15, 2023
Spain
As we get ready to arrive in Barcelona for the World Parkinson Congress, we wanted to learn more about the experience of people living with Parkinson’s in Spain. In this episode, Dr. Soania Mathur is joined by Paqui Ruiz who lives in Spain.
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Jun 8, 2023
Uganda
For some people in our global Parkinson’s community, the misconceptions about the disease and its causes can lead to complete isolation. In this episode, Dr. Soania Mathur speaks with Hannington Kabugo about his experience with Parkinson's in Uganda.
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Jun 1, 2023
Peru
This year the World Parkinson Congress is coming to Barcelona. As the WPC approaches, Dr. Soania Mathur is talking with people impacted by Parkinson’s around the world to hear about their experiences living with the disease. In this episode, she's joined by Ana Maria and Ray who are living in Peru.
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Oct 31, 2022
Loved ones join the team
Thirteen people crossed the finish line of the Portland to Coast relay. In this episode, BGF Executive Director Katrina Kahl talks to Mike McCastle and Jenn Rohl, loved ones of people with Parkinson's, about their experience being on the team.
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Oct 24, 2022
Dealing with diagnoses
Gigi Van Rysellberghe's Parkinson's diagnosis rounded out an 18-month period she jovially calls her “medical trifecta.” Before her PD diagnosis, Gigi had recently undergone spinal fusion surgery and fought breast cancer. In this episode, Gigi talks to co-hosts Brian Grant and Heather Kennedy about her fiercely optimistic approach to dealing with multiple diagnoses.
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Oct 17, 2022
Adapting to change
Kevin Kwok's "muscle through" approach to living with young onset Parkinson's disease got him through the early stages of his diagnosis. But as the disease has progressed, Kevin has learned to adapt to the changes. In this episode, Kevin talks to co-hosts Brian Grant and Heather Kennedy about the road he is on now and the mental shift he's made to come to grips with living with mid-stage PD.
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Oct 10, 2022
Just doing it
Amber Hesford doesn’t indulge in plans and aspirations for her future. As a working single mom who is living with young onset Parkinson’s disease, Amber is taking it day by day. In this episode, Amber talks to co-hosts Brian Grant and Heather Kennedy about the unique challenges she faces in her Parkinson’s journey and her humorous approach to living with the disease.
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Oct 3, 2022
Being a care partner
Kerry Rae Connolly was getting ready to celebrate her 40th birthday when her husband, Harry, was diagnosed with young onset Parkinson's disease. A few years later Harry had a massive stroke while undergoing deep brain stimulation and, in an instant, Kerry Rae became his full-time care partner. In this episode, Kerry Rae talks to co-hosts Brian Grant and Heather Kennedy about how optimism, laughter and support from others helped them cope until Harry passed away in 2021.
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Sep 26, 2022
Brian's thoughts at the finish line
On August 27, 2022, Team Grant crossed the finish line of the Portland to Coast relay. In this bonus episode, Brian talks about his motivation to get across the finish line and what's next for him.
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Sep 19, 2022
Finding joy
When elite rower Todd Vogt was diagnosed with young onset Parkinson's disease, he thought his rowing days were over. But this week Todd is on his way to the World Rowing Championships. In this episode, Todd talks to co-hosts Brian Grant and Heather Kennedy about how he found a way to continue doing the sport he loves.
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Apr 27, 2022
The Live Show
Brian, Heather, Amber and Kevin answered your questions live! Amy Lavallee, who is also living with young onset Parkinson's disease, moderated the show. To watch the recording of the live show visit briangrant.org.
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Apr 22, 2022
Diversity
When people think about Parkinson’s they probably don’t picture a 36-year-old who just finished a 12-year career in the NBA or a single mom with young kids. But Parkinson’s can affect anyone. In this episode, Brian and Heather are joined by special guests Amber Hesford and Kevin Kwok to talk about the need for better representation in the Parkinson's community.
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Apr 15, 2022
Lifestyle
Regular exercise, a nutritious diet and other healthy habits can have a positive impact on Parkinson’s symptoms and quality of life. But when life gets tough, it’s easy to neglect physical and mental health. In this episode, Brian and Heather discuss the benefits and challenges of adopting a healthy lifestyle.
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Apr 8, 2022
Parenting
Even in the best of times, parenting can be hard. When you’re parenting with Parkinson’s, getting yourself and your kids ready for the day and managing activities has added complications. Plus, there’s the emotional toll that a Parkinson’s diagnosis can have on a family. In this episode, Brian and Heather discuss being the parents of young kids when they were diagnosed with Parkinson's.
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Apr 1, 2022
Socializing
Connecting with other people is one of the great joys of life. When you're living with Parkinson's, navigating the social world and communicating about the disease can lead some people to start isolating. In this episode, Brian and Heather discuss how they navigate social situations, including dating.
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Mar 14, 2022
Introducing On Time: A Parkinson's Podcast
On Time is a podcast about living with Parkinson's disease. Co-hosts Brian Grant and Heather Kennedy share their candid stories of daily living with young onset Parkinson's, discussing topics like socializing, dating, parenting and the benefits and challenges of adopting a healthy lifestyle. On Time: A Parkinson's Podcast is coming April 1 from the Brian Grant Foundation.
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