Have The Nerve: A Podcast About Disability
Spinal Cord Injuries Australia
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Have The Nerve is a podcast brought to you by Spinal Cord Injuries Australia and funded by the Australian Government Department of Social Services. Join host, Susan Wood, as she talks you through everything to do with disability.
Available episodes
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Sep 20, 2023
Episode 29: Companion Cards and the Meticulous Planning Just To Go Out
It's getting into the warmer seasons now and when the weather gets warmer people like to go out more.
What does that have to do with this episode?
Senior Community Services Coordinator Laura Burling and Representative Advocate Jade Williams talk with Susan about what a Companion Card is, why they are important and they talk about why more people should understand the meticulous planning behind going to even the most simple of social situations for most people with disabilities.
*Information in this episode:
*National Companion Card (Australia wide): https://www.dss.gov.au/our-responsibilities/disability-and-carers/program-services/for-people-with-disability/national-companion-card
SCIA Representative Advocacy: https://scia.org.au/advocacy-policy/
SCIA Support Coordination: https://scia.org.au/ndis-support-coordination/
*Credits
*This episode has been written, produced and edited by Susan Wood. Logo art by Cobie Ann Moore.
Spinal Cord Injuries Australia is a for-purpose organisation that supports people with a spinal cord injury and other neurological conditions. For more information about our supports and services, visit our Resource Hub at https://bit.ly/ResourceHubSCIA.
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Jul 30, 2023
Episode 28: Have the courage to be your own advocate
In this episode of Have the Nerve Susan speaks to Geraldine Watts. disability advocate. After a series of accidents that affected her spine, in 2016 her intervertebral disc disintegrated and she lost mobility, function and sensation. It was only in 2020 where she was formerly diagnosed with a spinal cord injury that set her off to find and absorb as much information about her disability as possible.
We talk about her journey with mental health and mental wellbeing, the barriers of accessing health services, and even general information living in rural and regional Australia, we talk about courage and how she’s turned from feeling shy to an outspoken advocate for people with disabilities in her now regional community.
*Information in this episode:
*SCIA's Resilience Program - Engage: https://scia.org.au/engage/
SCIA's Resilience Program - Wellness Recovery Action Plan: https://scia.org.au/wrap/
SCIA's Resilience Programs Engage and WRAP is for people with disabilities, their family and caregivers: Register your interest here
SCIA's Representative Advocacy: https://scia.org.au/advocacy-policy/
Our Represtentative Advocacy Team is located in Sydney, Illawarra and Hunter regions of New South Wales. They hold Online Network Forums, face-to-face advocacy catch ups and advocacy education workshops. Click here to register.
*Credits
*This episode has been written, produced and edited by Susan Wood. Logo art by Cobie Ann Moore.
Spinal Cord Injuries Australia is a for-purpose organisation that supports people with a spinal cord injury and other neurological conditions. For more information about our supports and services, visit our Resource Hub at https://bit.ly/ResourceHubSCIA.
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Jun 29, 2023
Episode 27: Ground Zero at Brand X - Voices from #SydneyWorldPride Part Two
Sydney WorldPride 2023 didn’t just happen in two weeks between February to March, it’s the gift that keeps on giving and Susan will keep giving those gifts.
Let's cast our minds back, hit rewind, do some reminiscing and hear performances and interviews of the artists that made up Ground Zero at Brand X in Darlinghurst, New South Wales.
Ground Zero was a performing arts creative development and performance program presented as part of The Flying Nun by Brand X and Sydney WorldPride 2023.
Ground Zero was supported by the Wales Family Foundation and audience donations.
Audio Recorded and Mixed by Douglas Walker. Performances in this episode have been by permission of each artist, and are not played in full, except for Christopher Bryant's 'New Balance'.
If you would like to enquire about the full recordings please contact Brand X at info@brandx.org.au.
*Information in this episode:*
Brand X: https://www.brandx.org.au/
Ground Zero Artist Announcement (Brand X): https://www.brandx.org.au/news/ground-zero-artist-annoucement
Episode 24 - Voices from Sydney Mardi Gras 2023 #SydneyWorldPride: https://scia.org.au/resource-hub/voices-from-sydney-mardi-gras-202-ep24/
*Artists in order of Ground Zero performance appearance:*
‘Spoons’
Created and performed by Saskia Ellis
Composed by WYTCHINGS (aka Jenny Trinh)
‘No Romo’
Created and performed by Artemis Muñoz
With support from Erin Neill
‘New Balance’
Created and performed by Christopher Bryant
Director/Dramaturgy by Emma Palackic
Composed by Romy Seven Fox
‘Coconut Baby’
Created and performed by Sarah Carroll
‘Cupcake’
Created and performed by Robyn Reynolds
*Artist Links
*Creative Director - Dan Graham: https://dangraham.com.au/*
*Saskia Ellis - Sydney Dance Company Article: https://www.sydneydancecompany.com/discover/the-2020-pre-professional-year-dancers-reflect-on-their-first-term/
Artemis Munoz: https://www.artemismunoz.com/
Christopher Bryant: http://www.christopher-bryant.com/
Sarah Carroll: https://www.instagram.com/_sarahleigh/
Robyn Reynolds (MC): https://www.robynreynoldscomedy.com/
*Credits
*This episode has been written, produced and edited by Susan Wood. Logo art by Cobie Ann Moore.
Spinal Cord Injuries Australia is a for-purpose organisation that supports people with a spinal cord injury and other neurological conditions. For more information about our supports and services, visit our Resource Hub at https://bit.ly/ResourceHubSCIA.
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May 28, 2023
Episode 26: Emergency Preparedness and Planning for People with Disabilities
According to the Department of Foreign Affairs and Trade, the Asia-Pacific region is the most disaster prone region in the world.
Australia has a long history with heatwaves, bushfires, drought, flood and tropical cyclones and we’re going from La Nina to El Nino, meaning, potentially a repeat of the 2019 – 2020 bushfires that saw the whole country on fire.
In this episode, Susan talks to Michelle Villeneuve, Associate Professor of Occupational Therapy and Deputy Director at the Centre for Disability Research and Policy at University of Sydney about this emerging interest, how COVID-19 came in and changed everything.
*Information in this episode:
*Michelle Villenueve - University of Sydney, Faculty of Medicine and Health: https://www.sydney.edu.au/medicine-health/about/our-people/academic-staff/michelle-villeneuve.html
Collaborating 4 Inclusion: https://collaborating4inclusion.org/
Person-Centred Emergency Preparedness (P-CEP) Resource Package: https://collaborating4inclusion.org/disability-inclusive-disaster-risk-reduction/p-cep-resource-package/
Person-Centred Emergency Preparedness (P-CEP) Workbook: https://collaborating4inclusion.org/wp-content/uploads/2020/08/2020-08-19-Person-Centred-Emergency-Preparedness-P-CEP-WORKBOOK_FINAL.pdf
Disability and Australia’s Disability Strategy 2021–2031 - Australian Department of Social Services: https://www.dss.gov.au/disability-and-australias-disability-strategy-2021-2031
Department of Foreign Affairs and Trade - Disaster Risk Reduction and Resilience: https://www.dfat.gov.au/development/topics/development-issues/building-resilience/drr/disaster-risk-reduction-and-resilience
United Nations Office for Disaster Risk Reduction: https://www.undrr.org/disability-inclusion-disaster-risk-reduction
Australian Human Rights Commission - United Nations Convention on the Rights of Persons with Disabilities (UNCRPD): https://humanrights.gov.au/our-work/disability-rights/united-nations-convention-rights-persons-disabilities-uncrpd
*Credits
*This episode has been written, produced and edited by Susan Wood. Logo art by Cobie Ann Moore.
Spinal Cord Injuries Australia is a for-purpose organisation that supports people with a spinal cord injury and other neurological conditions. For more information about our supports and services, visit our Resource Hub at https://bit.ly/ResourceHubSCIA.
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Apr 26, 2023
Episode 25: The Underdogs - Disability and High School
In Episode 23 - Be Curious, Not Judgemental, Paediatric Nurse Consultant Jodie Thompson from Kids Collaborative and Paediatric Clinical Psychologist Amanda Lane-Brown talked with Susan about primary schooling and children with disabilities.
What about high school?
CONTENT WARNING: This episode discusses suicidal ideation and addiction. Listener discretion is advised. If you are struggling with similar feelings we encourage you to please call the 24 hour crisis support service Lifeline on 13 11 14.
In this episode we talk about self-esteem, body image comparisons, raging hormones, bullying and that endless cycle of trying to be someone you aren’t.
*Information in this episode
*Kids Collaborative: https://kidscollaborative.com.au/
Disability Support Guide Amanda Lane-Brown: https://www.disabilitysupportguide.com.au/profile/amanda-lane-brown
University of Sydney Amanda Lane-Brown: https://www.researchgate.net/profile/Amanda-Lane-Brown
The Ted Lasso scene - Season 1, Episode 8 The Diamond Dogs: https://www.youtube.com/watch?v=oZ4YSXv6Xkg
SCIA Resilience Programs - https://scia.org.au/resilience-programs/
*Credits
*This episode has been written, produced and edited by Susan Wood. Logo art by Cobie Ann Moore.
Spinal Cord Injuries Australia is a for-purpose organisation that supports people with a spinal cord injury and other neurological conditions. For more information about our supports and services, visit our Resource Hub at https://bit.ly/ResourceHubSCIA.
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Feb 27, 2023
Episode 24: Voices from Sydney Mardi Gras 2023 #SydneyWorldPride
It is Sydney WorldPride and Have The Nerve will be bringing you interviews from all over the place, highlighting the voices of people with disabilities in this community.
TW: This episode does contain content about abuse that can be triggering to some people.
In this episode, you'll here from Aspen Luke, a 17 year old Susan met on the train, who is about to participate in his first Mardi Gras on Aspect/Austism Australia’s float and former president of People With Disability Australia (PWDA) Dr David Abello who participated in the first ever Gay and Lesbian Mardi Gras in 1978 and is on the 78ers float in 2023.
*Information in this episode
*History of Sydney Mardi Gras: https://www.mardigras.org.au/history-of-sydney-mardi-gras/
People with Disability Australia: https://pwd.org.au/
PWDA at Sydney WorldPride 2023: https://www.scoop.co.nz/stories/WO2302/S00110/people-with-disability-australia-at-2023-sydney-world-pride.htm
WorldPride a parade of inclusion and solidarity for Aspen - NDIS: https://www.ndis.gov.au/stories/8869-worldpride-parade-inclusion-and-solidarity-aspen
Aspen Luke - Linktree: https://linktr.ee/aspenluke
*Credits
*This episode has been written, produced and edited by Susan Wood with assistance by Effie Manetakis. Logo art by Cobie Ann Moore.
Spinal Cord Injuries Australia is a for-purpose organisation that supports people with a spinal cord injury and other neurological conditions. For more information about our supports and services, visit our Resource Hub at https://bit.ly/ResourceHubSCIA.
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Feb 5, 2023
Episode 23: Be Curious, Not Judgemental - Disability and Primary Schools
It's the beginning of a new school year for students in Australia. For the first episode of 2023 (coincidentally starting with Episode 23!), Paediatric Nurse Consultant Jodie Thompson from Kids Collaborative and Paediatric Clinical Psychologist Amanda Lane-Brown talk with Susan about how being curious to ask questions without judgement is THE key element for children with a disability entering primary school.
We also talk about self-esteem, masking disability and how there should be a greater emphasis on education system and parents working together to get the best possible outcome for children.
This is two part series, we will be following this up with an upcoming episode about high schoolers and disability.
*Information in this episode
*Kids Collaborative: https://kidscollaborative.com.au/
Disability Support Guide Amanda Lane-Brown: https://www.disabilitysupportguide.com.au/profile/amanda-lane-brown
University of Sydney Amanda Lane-Brown: https://www.researchgate.net/profile/Amanda-Lane-Brown
9 reasons now is the time to read these comic books about kids with disability: https://northcott.com.au/9-reasons-now-is-the-time-to-read-these-comic-books-about-kids-with-disability/
Continence Foundation of Australia - Toilet Tactics: https://www.continence.org.au/incontinence/who-it-affects/children/toilet-tactics
Australian Institute of Teaching and School Leadership Limited - Inclusive Education: https://www.aitsl.edu.au/research/spotlights/inclusive-education-teaching-students-with-disability
Raising Children - School support for children with disability: https://raisingchildren.net.au/disability/school-play-work/school/school-support-disability
Autism Spectrum Australia - Life Stages Primary School: https://www.autismspectrum.org.au/life-stages/primary-school
*Credits
*This episode has been written, produced and edited by Susan Wood with assistance by Effie Manetakis. Logo art by Cobie Ann Moore.
Spinal Cord Injuries Australia is a for-purpose organisation that supports people with a spinal cord injury and other neurological conditions. For more information about our supports and services, visit our Resource Hub at https://bit.ly/ResourceHubSCIA.
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Dec 21, 2022
Episode 22: Finding your confidence on the days when you really feel disabled
On the final episode of 2022, Emily Bray comes on to talk about confidence, meaning and purpose on the days when you really feel disabled.
What does that mean? These are the times where something has happened and you have the very confrontational thought: "Holy crap. I'm actually disabled".
Where do you find the resilience to keep going when you have a body that requires you to think about added challenges?
How do you feel confident going to the shops or going… anywhere with a running commentary in your head about what your plan b, c, d and e is if everything goes wrong?
Emily from SCIA's Resilience Programs and Susan talk about gaining and retaining confidence, meaning and purpose, especially when there are situations with unavoidable everyday anxieties, confronting those “Holy crap. I’m actually disabled” days, and finding your community.
*Information in this episode
*SCIA Resilience Programs: https://scia.org.au/resilience-programs/
Engage - Find meaning and purpose: https://scia.org.au/engage/
Wellness Action Recovery Plan (WRAP): https://scia.org.au/wrap/
*Credits
*This episode has been written, produced and edited by Susan Wood with assistance by Effie Manetakis. Logo art by Cobie Ann Moore.
Spinal Cord Injuries Australia is a for-purpose organisation that supports people with a spinal cord injury and other neurological conditions. For more information about our supports and services, visit our Resource Hub at https://bit.ly/ResourceHubSCIA.
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Nov 13, 2022
Episode 21: NDIS, WTH?! (Where's The Help)
When you don't know what something is, how do you know what to ask for?
The most major reform for people with disabilities in Australia, but so fraught with tedious obstacles. This is the third episode where we have covered the NDIS because it is such a complicated beast.
How much do you actually know about NDIS Support Coordination?
Have you ever looked at your NDIS plan and felt lost? Confused?
Have you ever attempted to find legal aid to help you at an Administrative Appeals Tribunal?
In this episode Louise and Mel from our Community Services team and April from our Policy and Advocacy team talk about how NDIS support plans seem both too broad and too specific, how educating NDIS planners and Local Area Coordinators can really benefit participants, how all of these combined contribute to everyone getting NDIS burnout and the inaccuracies behind the phrase “NDIS blowout”.
*Information in this episode
*SCIA Support Coordination: https://scia.org.au/ndis-support-coordination/
SCIA Policy and Advocacy: https://scia.org.au/advocacy-policy/
NDIS Creating Your Plan - Typical Support Package: https://ourguidelines.ndis.gov.au/your-plan-menu/creating-your-plan
Administrative Appeals Tribunal - NDIS: https://www.aat.gov.au/steps-in-a-review/national-disability-insurance-scheme-ndis/assistance
Administrative Appeals Tribunal Act 1975 - Sect 42D remittal: http://classic.austlii.edu.au/au/legis/cth/consol_act/aata1975323/s42d.html
Assistive Technology Explained (NDIS): https://www.ndis.gov.au/participants/assistive-technology-explained
Ageing Disability and Home Care (ADHC) is part of the Department of Family and Community Services
Legal Aid NSW: https://www.legalaid.nsw.gov.au/
Legal assistance services (Australia wide): https://www.ag.gov.au/legal-system/legal-assistance-services
Mozo - National Disability Insurance Scheme added $52 billion to economy in 2020-21, research shows (article): https://mozo.com.au/family-finances/national-disability-insurance-scheme-added-52-billion-to-economy-in-2020-21-research-shows
*Credits
*This episode has been written, produced and edited by Susan Wood with assistance by Cobie Ann Moore and Effie Manetakis. Logo art by Cobie Ann Moore.
Spinal Cord Injuries Australia is a for-purpose organisation that supports people with a spinal cord injury and other neurological conditions. For more information about our supports and services, visit our Resource Hub at https://bit.ly/ResourceHubSCIA.
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Oct 19, 2022
Episode 20: The Overlooked Victim Survivors of Domestic Violence and Sexual Assault
TW: This episode talks about domestic violence, sexual assault, coercive control and suicide. Listener discretion is advised.
If you need support you can call the National Domestic Family and Sexual Violence Counselling Service on 1800 RESPECT or visit https://www.1800respect.org.au/
In Australia, on average, one woman a week is murdered at the hands of a current, or former partner, and approximately 10 women a day are hospitalised for assault injuries perpetrated by spouse or domestic partner and evidence shows that women with disabilities in Australia are two times more likely to experience sexual violence and intimate partner violence.
Nicole Lee is a victim survivor of domestic, family and sexual violence and uses her first hand experience as a person with a disability to help advocate for others with a disability who are also victim survivors of abuse.
Susan and Nicole talk about her journey, the cycle of coercive control and how the systems set up for someone to escape violence isn't built for people with disabilties.
*Support Resources
*Reach out - Domestic Violence support: https://au.reachout.com/articles/domestic-violence-support
Lifeline Crisis Chat: https://www.lifeline.org.au/crisis-chat/
Australian Government Support Directory - respect.gov.au: https://www.respect.gov.au/services/
Staying Home Leaving Violence: https://www.facs.nsw.gov.au/domestic-violence/services-and-support/programs/staying-home-leaving-violence
*Information in this episode
*Nicole Lee: https://speakingout.com.au/speaker/nicole-lee/
Women with disability are being turned away by family violence services in Australia - SBS: https://www.sbs.com.au/news/article/women-with-disability-are-being-turned-away-by-family-violence-services-in-australia/bqjumdl3c
Women living with disability can face extra hurdles breaking free of abusers, survivor warns - ABC: https://www.abc.net.au/news/2021-08-23/domestic-violence-and-disability-challenges-to-getting-out/100359908
The Choice - Violence or Poverty: https://www.violenceorpoverty.com/
Rosie Batty: https://en.wikipedia.org/wiki/Rosie_Batty
Phil Cleary: sister's death led to drive for justice: https://www.thecourier.com.au/story/1695362/phil-cleary-sisters-death-led-to-drive-for-justice/
The Duluth Model Understanding the Power and Control Wheel: https://www.theduluthmodel.org/wheels/understanding-power-control-wheel/
So, what exactly is coercive control? - Laura Richards: https://www.laurarichards.co.uk/coercive-control/
Spinal Cord Injuries Australia is a for-purpose organisation that supports people with a spinal cord injury and other neurological conditions. For more information about our supports and services, visit our Resource Hub at https://bit.ly/ResourceHubSCIA.
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Sep 7, 2022
Episode 19: I Am More Than My Disability
It is Spinal Cord Injury Awareness Week in Australia and this year we’re saying #IAmMoreThanMyDisability.
Emily Bray is a wife, mother, social worker, researcher and PhD candidate.
We talk about the language of disability and subconscious bias. What happens if you don’t want to be an athlete? Well… nothing, you just live a regular life. But why does it seem to hard for the broader community to grasp?
We cover so many things: awareness days, disability only events, being congratulated for just living and existing, the difficulty of finding friends, the difficulty in finding work, so many things when people don’t look beyond and consider the person first.
*Credits
*This episode has been written, produced and edited by Susan Wood. Logo art by Cobie Ann Moore.
Spinal Cord Injuries Australia is a for-purpose organisation that supports people with a spinal cord injury and other neurological conditions. For more information about our supports and services, visit our Resource Hub…
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Aug 31, 2022
Episode 18: Neuroplasticity and The Human Body
For this episode of Have the Nerve, Susan talks to Dr Camila Quel de Oliveira, Lecturer in Physiotherapy at UTS, and NeuroMoves Physiotherapist Hannah Maslen about the most amazing part of the human body – the brain.
From in the womb to end of life, we talk about neuroplasticity and the information super highway that is the spinal cord. How does this relate for people with spinal cord injuries? Camila and Hannah will tell you all about it.
*Information in this episode
*NeuroMoves exercise service (Australia wide): https://scia.org.au/neuromoves-exercise/
Dr Camila Quel de Olivera - Lecturer in Physiotherapy at University of Technology Sydney (UTS): https://profiles.uts.edu.au/Camila.QuelDeOliveira
The eWalk Trial - Neuroscience Research Australia (NeuRA): https://www.neura.edu.au/the-ewalk-trial-transcutaneous-spinal-cord-stimulation-to-improve-walking-in-people-with-incomplete-spinal-cord-injury/
Project Spark - SCIA: https://scia.org.au/2022/02/07/project-spark-for-an-australi…
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Aug 17, 2022
Episode 17: The Importance of Diversity in Politics with Senator Jordon Steele-John
In this episode Susan speaks to Western Australia Greens Senator, Jordon Steele-John.
We talk about his first day working at Parliament House as a person with a disability, the importance of disability representation in politics and diversity and how including people with disabilities in legislation goes well beyond topics such as the NDIS and Disability Support Pension.
*Information in this episode*
Jordon Steele-John: https://www.aph.gov.au/Senators_and_M...
https://greens.org.au/wa/person/jordo...
Australian Greens: https://greens.org.au/
*Credits
*This episode has been written, produced and edited by Susan Wood with assistance by Effie Manetakis. Logo art by Cobie Ann Moore.
Spinal Cord Injuries Australia is a for-purpose organisation that supports people with a spinal cord injury and other neurological conditions. For more information about our supports and services, visit our Resource Hub at https://bit.ly/ResourceHubSCIA.
Spinal Cord Injuries Australia is a for-purpose o…
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Aug 2, 2022
Episode 16: The Psychology of Grief, Pain and Complex Trauma
Listeners are advised that the following podcast does discuss situations around grief and trauma that can be triggering to people.
On this episode I talk about the complexities of grief and trauma with clinical psychologist, Skye Dong.
Skye helped develop SCIA’s Engage Program as part of our broader Resilience Programs. We're going to talk about the different ways people manifest pain and trauma, and why the way we deal with trauma and pain in terms of disability is a lot more than the disability itself.
*Information about what we've discussed in the episode:
Skye Dong, Clinical Psychologist: *http://www.skyedong.com/*
Australian Clinical Psychology Association: *https://acpa.org.au/find-a-clinical-psychologist/ *
Blue Knot Foundation: *https://blueknot.org.au/ *
Mental Health Treatment plan (Australia only): *https://www.healthdirect.gov.au/mental-health-treatment-plan
*SCIA Resilience Programs - Engage: *https://scia.org.au/engage/
* *
*SCIA Peer and Family Support Team:* h…
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Jun 3, 2022
Episode 15: Employment, Disability and Changing a Culture of Discrimination
Finding work and having a disability is hard.
No like, it's really hard.
In this episode, Susan talks to Phat Ngo, Employment Service Manager for SCIA's EmployAbility Service and Dominika Jachym, EmployAbility's Employment Coach about the obvious misconceptions of disability and employment, how that feeds into the hesitation a lot of employers have when hiring someone with a disability, how employers can better themselves to be a more inclusive workplace, help people with disabilities climb the career ladder and how COVID has forced people to start looking at what employment means in a different light.
*Information about what we've discussed in the episode:
EmployAbility: *https://employability.org.au/*
Disability Gateway: *https://www.disabilitygateway.gov.au/*
Job Access - Driving Disability Employment:* https://www.jobaccess.gov.au/home
*Credits
*This episode has been written, produced and edited by Susan Wood with assistance by Cobie Ann Moore and Michelle Kearney. Logo art…
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May 4, 2022
Episode 14: Why is standing so important for people who can’t move their legs?
Maybe some of you may not have thought this was possible. Maybe some of you didn't know that this could and should be something to consider.
We're not talking about miraculously standing up and walking around, Physiotherapist Colbey Van Leeuwen and Exercise Physiologist Alicia Payne talk about the importance of standing in therapy, particularly for people who have had traumatic spinal cord injuries, the technology and what the research says.
*Credits
*This episode has been written, produced and edited by Susan Wood with assistance by Colbey Van Leeuwen, Michelle Kearney and Nathan Mikhael. Logo art by Cobie Ann Moore.
Spinal Cord Injuries Australia is a for-purpose organisation that supports people with a spinal cord injury and other neurological conditions. For more information about our supports and services visit our Resource Hub at https://bit.ly/ResourceHubSCIA.
*Information about what we've discussed in the episode (There are a LOT of citations. Strap yourselves in):
NeuroMo…
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Mar 30, 2022
Episode 13: Sexual Rights, Sex Work and Disability with Rachel Wotton
That irresistible urge, the attraction, the anticipation and excitement for the slightest touch. Rachel calls it skin hunger.
Rachel Wotton is a Sex Worker living in Inner Sydney, Churchill Fellow and PhD candidate at Western Sydney University. Her PhD is about exploring the experiences of people with disabilities accessing sex workers in Australia.
Susan and Rachel talk about the misconceptions of two marginalised communities, the legacy of her 2011 documentary Scarlet Road, how her work has helped many people with disabilities to find independence and confidence and how she helped get sex work on the NDIS.
We want to make a follow up episode with Rachel with questions by you!
Ask anything here: *https://bit.ly/HaveTheNerveRachelWotton*. You will remain anonymous.
*Information about what we've discussed in the episode:
Rachel Wotton:* https://www.rachelwotton.com/
*Participate in her survey and read more about Rachel's research:* http://www.pasa-research.com.au/
*Scarlet Road d…
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Feb 2, 2022
Episode 12: So, How Disabled Do You Need To Be For The NDIS?
Eligibility within the NDIS is a little bit of grey area.
Although under the NDIS Act 2013 there are no specific diagnosis or disabilities listed, actually accessing the NDIS can be fraught with problems.
For the first full episode of Have the Nerve in 2022, Susan talks to SCIA's Senior Support Coordinator Louise Hilton and SCIA's Policy and Advocacy Officer Megan Bingham about about how the selective process of funding has larger systemic consequences and where a gap in disability education has left people behind.
*Information about what we have discussed in this episode:
The NDIS Act*: https://www.ndis.gov.au/about-us/governance/legislation
*National Disability Insurance Scheme Act 2013 - Federal Register of Legislation: *https://www.legislation.gov.au/Details/C2013A00020
*Access to the NDIS - The Disability Requirements:* https://www.ndis.gov.au/about-us/operational-guidelines/access-ndis-operational-guideline/access-ndis-disability-requirements
*SCIA NDIS Support Coordinatio…
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Dec 1, 2021
Episode 11: Tourism, Access and City Planning with Access Bondi
Now that Summer is upon us in the Southern Hemisphere, Mike Cerrone, Project Officer for Waverley Council's Access Bondi! talks to Susan about why it's important for tourist destinations to be accessible for all people of all abilities.
Bondi Beach is a popular tourist destination on the east coast of Australia that brings in millions of visitors every year. We talk about how decent and suitable access can change society's perceptions on inclusion, give people freedom of choice when they go out and how your input can help encourage local councils to make accessibility a priority.
*Information about what we have discussed in this episode:
Access Bondi! - *https://www.waverley.nsw.gov.au/community/disability_inclusion/access_bondi
*Bondi Beach *- https://www.sydney.com/destinations/sydney/sydney-east/bondi/beach-lifestyle
*NRMA x SCIA November 2021 joint report 'Where Do I Park?' -* https://www.mynrma.com.au/-/media/nrma-where-do-i-park-report.pdf
*Waverley Council Access & inclusi…
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Oct 13, 2021
Episode Ten: Psychosexual Exploration, Sexual Self-Esteem and Disability
Candice Care-Unger and Arlyn Owens from Royal Rehab's Sexuality Service in Sydney talks to Susan about how sexual self-esteem and empowering sexual confidence in people with disability is more than the literal mechanics of sex.
Whether you've had your disability long term, or recently, Candice and Arlyn talk about psychosexual intervention, the holistic approach to sexual wellbeing and how the media's ableist portrayal of sex has skewed society's expectation of dating someone with a disability.
*Information about what we have discussed in this episode:
Royal Rehab Sexuality Service:* https://royalrehab.com.au/sexuality-service/ (In person and via Telehealth all over Australia)
Royal Rehab's Sexuality Service is a paid service that can be funded by the National Disability Insurance Scheme (NDIS)
*Relationships and Sexuality Counselling:* https://royalrehab.com.au/relationship-and-sexuality-counselling/
*Sexuality Clinic Sydney:*https://royalrehab.com.au/sexuality-clinic/
*Sexuali…
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Sep 22, 2021
Episode Nine: Nazim Erdem - Paralympic Gold Medalist, Wheelchair Rugby
We’re celebrating the diversity of disability and highlighting spinal cord injury awareness for the entire month of September.
In this bonus episode of Have The Nerve, former Australian Steeler and Paralympic Wheelchair Rugby Gold medalist, Naz Erdem joins me to talk about his life as a Paralympian across five Paralympic games, his post Paralympic career and his hopes for the future of disability and sports.
*Information about what we have discussed in this episode:
Paralympics Australia: *https://www.paralympic.org.au/
*Disability Sports Australia: *https://www.sports.org.au/sports
*Australian Steelers - Wheelchair Rugby: *http://www.wheelchairrugby.com.au/australian-steelers
*BSF Asia:* https://bsfasia.org/
*Credits
*This episode has been written, produced and edited by Susan Wood. Logo art by Cobie Ann Moore.
Spinal Cord Injuries Australia is a for-purpose organisation that supports people with a spinal cord injury and other neurological conditions. For more information about…
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Sep 15, 2021
Episode Eight: Louise Sauvage - Paralympic Gold Medalist and Coach, Wheelchair Racing
Have The Nerve is celebrating the diversity of disability and the importance of disability representation for the month of September.
In this episode, Louise Sauvage (Former wheelchair racer, Australian Paralympic Wheelchair Racing Gold Medalist and now the coach for up-and-coming wheelchair para-athletes and Australian Paralympic gold medalist Madison de Rozario), talks about growing up in Perth, her career as a Paralympian and the importance of universal accessible design and disability representation.
*Information about what we have discussed in this episode:
Paralympics Australia: *https://www.paralympic.org.au/
*Louise Sauvage - Paralympics Australia: *https://www.paralympic.org.au/louise-sauvage-oam/
*Madison de Rozario - Paralympics Australia: *https://www.paralympic.org.au/athlete/madison-de-rozario/
*Disability Sports Australia: *https://www.sports.org.au/sports
*Credits
*This episode has been written, produced and edited by Susan Wood with assistance from Michelle Kearney…
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Aug 11, 2021
Episode Seven: Talking about first experiences after a spinal cord injury
When you think about first milestones in your life what do you think about?
First day of school?
First kiss?
First boyfriend or girlfriend?
....What about the first time you realised your injury is permanent? Or the first time you fell out of your wheelchair?
It's not often we get to talk about what it's like to experience, or sometimes re-experience, things for the first time following a spinal cord injury.
Chloe and Jacob talk with Susan talk about the confronting realisation of acquiring a spinal cord injury and the path of first time experiences that have shaped the way they see their disability now.
*Information about what we have discussed in this episode:*
*Living with Paralysis - *https://scia.org.au/living-with-paralysis/
*Continence Care *- https://scia.org.au/continence-care/
*Sexuality and Fertility *- https://scia.org.au/health-and-wellbeing/sexuality-and-fertility/
*Accessibility *- https://scia.org.au/accessibility/
*Credits
*This episode has been written, produc…
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Jul 7, 2021
Episode Six: Over 65s, NDIS and Aged Care funding
Navigating support funding for older Australians with a disability can be difficult. What happens if you are aged 65 and over and acquire a disability?
For this episode we’re going to be discussing supports for older Australians with a disability from the NDIS to My Aged Care Funding.
You'll hear lived experiences from Susan who sustained a brain injury in 2005 and was able to get onto the NDIS before she turned 65 and Di, who is the wife and primary carer of her husband, Gary who sustained a spinal cord injury in 2019 at the age of 70. They discuss and compare their experiences alongside Megan, who is a systemic advocate from SCIA's Policy and Advocacy team.
All personal opinions expressed in this episode are their own and are not a reflection of SCIA.
*Information about what we have discussed in this episode:*
National Disability Insurance Scheme: https://www.ndis.gov.au/
My Aged Care, Transitional Care and Home Care Packages: https://www.myagedcare.gov.au/
Legislative and R…
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Jun 2, 2021
Episode Five: Pain management and medicinal cannabis
What is like to live with pain that never stops? What is out there for pain management?
CONTENT WARNING: This episode discusses suicidal ideation and addiction. Listener discretion is advised. If you are struggling with similar feelings we encourage you to please call the 24 hour crisis support service Lifeline on 13 11 14.
For this episode, Susan talks to Cannadoc cofounders Dr David Feng and Kevin Brabazon about how medicinal cannabis is changing the lives of people with spinal cord injury and other neurological conditions when it comes to pain management.
She also speaks with Dean Tabone who sustained a spinal cord injury 33 years ago and had been struggling with pain management for the past 16 years.
All personal opinions expressed in this episode are their own and are not a reflection of SCIA.
*Information about what we have discussed in this episode:
Cannadoc: *https://cannadoc.com.au/
*Pain management:* https://scia.org.au/pain-management/
*Credits
*This episode has been…
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May 5, 2021
Episode Three: What you should know about SCI and bladder management
Did you know that acquiring a spinal cord injury can affect more than somebody's legs?
Spinal cord injury (SCI) can significantly affect the bladder. Edwina Spooner from Coloplast explains what a neurogenic bladder is, the importance of hygiene, good catheter technique and considerations you should make for situations like going out an intimacy.
*Information about what we have discussed in this episode:
*SCIA information about continence care - https://scia.org.au/continence-care/*
*Coloplast catheter information - https://www.coloplast.com.au/
*Credits
*This episode has been written, produced and edited by Susan Wood with assistance from Michelle Kearney and Nathan Mikhael. Logo art by Cobie Ann Moore.
Spinal Cord Injuries Australia is a for-purpose organisation that supports people with a spinal cord injury and other neurological conditions. For more information about our supports and services, visit our Resource Hub at https://bit.ly/ResourceHubSCIA.
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May 5, 2021
Episode Four: What you should know about SCI and bowel management
Did you know that acquiring a spinal cord injury can affect more than somebody's legs?
Spinal cord injury (SCI) can significantly affect the bowel. Edwina Spooner from Coloplast explains how an SCI can affect the bowel, surgical and non-surgical options, considerations for intimacy and maintaining your independence.
*Information about what we have discussed in this episode:
*SCIA Continence Care - https://scia.org.au/continence-care/*
*Coloplast continence information - https://www.coloplast.com.au/
Coloplast Peristeen - https://products.coloplast.com.au/coloplast/continence-care/peristeen/peristeen-tai/peristeen-tai-balloon-catheter/peristeen-transanal-irrigation-system/
*Credits
*This episode has been written, produced and edited by Susan Wood with assistance from Michelle Kearney and Nathan Mikhael. Logo art by Cobie Ann Moore.
Spinal Cord Injuries Australia is a for-purpose organisation that supports people with a spinal cord injury and other neurological conditions. For more i…
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Mar 31, 2021
Episode Two: Life lessons with SCIA's Peer and Family Support Team
Can having a disability change you?
The SCIA Peer and Family Support team talk about their lived experiences and the reality of living with a spinal cord injury.
Hear from Rob, Dan and Jess about what is truly important, lessons they’ve learnt along the way like patience, advocating for themselves, independence and dealing with mental health.
Let’s put disability into perspective; changing mindsets, learning from other people, engaging in support and services available and not forget about how important mental health is.
Spinal cord injury isn’t just doom and gloom, it’s about living your best life and focussing on what brings you joy.
All personal opinions expressed in this episode are their own and are not a reflection of SCIA.
*Information about what we have discussed in this episode:
SCIA Peer and Family Support Team -* https://scia.org.au/peer-support/
*NeuroMoves exercise service -* https://scia.org.au/neuromoves-exercise/
*Wheelchair Rugby - Disability Sports Aus…
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Mar 3, 2021
Episode One: Got Pride! Identity, discrimination and overcoming barriers for queer people with disability
What are some of the challenges that people with disability within the queer community face when finding supports?
Join host Susan Wood, SCIA Peer and Family Support Coordinator Jess Pellow, SCIA Policy and Advocacy Team Leader Michael Magro and ACON Community Health Promotion Officer, LGBTQ+ People With Disability Project Charbel Zada to talk about the QueerAbility NDIS Toolkit, dating and relationships, representation and what can we do as a society to better understand the issues and take action.
All personal opinions expressed in this episode are their own and are not a reflection of SCIA.
*Information about what we have discussed in this episode:*
ACON QueerAbility NDIS Toolkit - https://www.acon.org.au/who-we-are-here-for/people-with-disability/
*Credits
*This episode has been written, produced, and edited by Susan Wood with assistance from Michelle Kearney and Nathan Mikhael. Logo art by Cobie Ann Moore.
Spinal Cord Injuries Australia is a for-purpose organisation that supp…
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