Mar 11, 2021
Episode 11: Caregivers of Adults with I/DD
We often think of older adults as care recipients, but for parents of adults with Intellectual and Developmental Disabilities (I/DD), their caregiving journey can extend into their final years. What can a parent do to plan for their adult child’s care after they’re gone? Today we hear from Paula Gann about this and other questions she faces as a caregiver to her daughter Kyle, who lives with Down Syndrome and Alzheimer’s. We also talk to Kristin Rains, an Independent Dementia Care Trainer, and Shawn Ullman, Senior Director of National Initiatives at the Arc to hear their advice on future planning for caregivers, and for society. To find documents to help with future planning, visit https://futureplanning.thearc.org/ and if you have questions for Kristin, you can reach out to her directly at kristinjrains@gmail.com.