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Down Syndrome Center Podcast
Kishore Vellody, MD
This is the podcast series for the Down Syndrome Center of Western Pennsylvania at Children's Hospital of Pittsburgh of UPMC.
Nov 18, 2021
#118 - Early Intervention Services
Erica Balint, outreach coordinator for The Alliance for Infants and Toddlers, Inc., joined the podcast today to discuss Early Intervention Services for young children. What are early intervention services and how might they benefit children with Down syndrome? Listen to find out! For more information on Early Intervention Services in Pennsylvania, go to: Early Intervention (pa.gov) The Alliance for Infants and Toddlers HOME | The Alliance (afit.org) To partner in the efforts of the Down Syndrome Center: Down Syndrome Center is fundraising for Children's Hospital of Pittsburgh Foundation (justgiving.com)
Nov 5, 2021
#117 - COVID Vaccine for Younger Children and Boosters for Adults
Dr. Andy Nowalk joins the podcast again today to discuss the latest news in COVID as it relates to people with Down syndrome. The podcast highlights the release of the COVID vaccine for 5-11 year olds and discusses booster doses for people with Ds over 18 years old. You can partner with us in our service to the community, including this podcast, by going to http://www.givetochildrens.org/downsyndromecenter
Oct 28, 2021
#116 - Unexplained Regression in Down Syndrome
Dr. Stephanie Santoro with the Mass General Down Syndrome Program joined the podcast to discuss a relatively newly recognized condition called by several names including Unexplained Regression in Down Syndrome (URDS), Down Syndrome Disintegrative Disorder (DSDD), or Down Syndrome Regression Disorder (DSRD). Dr. Santoro will discuss the signs of the condition and the treatment options currently being found to be helpful in the latest research. More Information https://www.nature.com/articles/s41436-019-0706-8 Does My Loved One with Down Syndrome Have This Condition? Check Out This Regression Checklist https://static-content.springer.com/esm/art%3A10.1038%2Fs41436-019-0706-8/MediaObjects/41436_2019_706_MOESM2_ESM.docx Find a Regional Down Syndrome Center Near You Down Syndrome Clinic Listing | National Down Syndrome Congress (ndsccenter.org)
Oct 14, 2021
#115 - Approach to Selective ("Picky") Eaters
Selective (or "Picky") eaters are common in Pediatrics. Many parents receive advice on how to manage but what does the data show? Ann Meyers from Clinical Nutrition and Sarah Rossman from Occupational Therapy joined the podcast today to discuss this very important topic. Resources Tips for Feeding Picky Eaters - HealthyChildren.org Child of Mine: Feeding with Love and Good Sense, Revised and Updated Edition: Satter, Ellyn: 8601419522477: Amazon.com: Books Fearless Feeding: How to Raise Healthy Eaters From High Chair to High School: Jacobsen, Maryann, Castle, Jill: 9781732866201: Amazon.com: Books Join Us! If you would like to partner in the work of the Down Syndrome Center, please visit http://www.givetochildrens.org/downsyndrome. Thank you! Podcast photo credit: Getty Images
Sep 30, 2021
#114 - Self Talk, The Groove, and Other Common Behaviors in Ds (with Dennis McGuire)
World-reknowned expert and author on mental health and wellness in people with Down syndrome, Dennis McGuire, joined the podcast today to talk about common (and usually normal) behaviors in older children and adults with Down syndrome. RESOURCES Mental Wellness in Adults with Down Syndrome (Book) Mental Wellness in Adults with Down Syndrome: A Guide to Emotional and Behavioral Strengths and Challenges - Woodbine House If People with Down Syndrome Ruled the World (Essay) National Association for Down Syndrome | If People with Down Syndrome Ruled the World (nads.org) If you have benefitted from this podcast, please consider partnering in the work of the Down Syndrome Center at: http://www.givetochildrens.org/downsyndrome.
Sep 16, 2021
#113 - Behavioral Evaluation and Approach in Older Children (with Dr. Tarin Santamaria)
Dr. Tarin Santamaria, PsyD, NCSP, is the clinical psychologist for our Down Syndrome Center of Western Pennsylvania. She joined the podcast today to discuss how to assess and approach behaviors in school-aged children with Down syndrome. Please consider partnering in the work of the Down Syndrome Center by visiting http://www.givetochildrens.org/downsyndrome
Sep 2, 2021
#112 - COVID, Delta, and Ds (with Dr. Andrew Nowalk)
Dr. Nowalk joined to talk about the Delta variant outbreak and the potential impact for people with Down syndrome. Pittsburgh Vaccine Trials Unit https://covid19research.pitt.edu/pvtu CDC COVID Data https://www.cdc.gov/coronavirus/2019-ncov/index.html
Aug 19, 2021
#111 - School Based Physical Therapy in Children with Down syndrome (with Hellen Milligan, PT, MPT))
Helen Milligan, physical therapist with the Trisomy 21 Program at Children's Hospital of Philadelphia, joined the podcast to answer a listener question regarding physical therapy in the school aged child.
Aug 3, 2021
#110 - COVID and Return to School 2021 (with Dr. Andrew Nowalk)
Dr. Nowalk joined the podcast to discuss return to school for 2021 and ways that it looks different than even last year.
Jul 29, 2021
#109 - Sensory Processing in Ds (with Dr. Katie Frank)
Dr. Katie Frank, PhD, OTR/L, joined the podcast today to talk about sensory processing difficulties in people with Ds and therapeutic approaches. Resources: http://adscresources.advocatehealth.com Mental wellness in Ds book Mental Wellness in Adults with Down Syndrome: A Guide to Emotional and Behavioral Strengths and Challenges: Dennis McGuire, Brian Chicoine: 9781606132852: Amazon.com: Books Out of Sync Child Series The Out-of-Sync Child Series (3 books) Kindle Edition (amazon.com) Sensational Kids Lucy Miller Amazon.com : sensational child STAR Institute Sensory Processing - STAR Institute (sensoryhealth.org)
Jul 15, 2021
#108 - Pain Perception and Expression in Down Syndrome (with Dr. Meredith Wright Whittaker)
Dr. Meredith Wright Whittaker, PhD, joined the podcast today to share her personal experiences and literature review on pain perception and expression in people with Down syndrome. For more information, please see the article discussed: Pain perception in people with Down syndrome: a synthesis of clinical and experimental research (nih.gov)
Jul 1, 2021
#107 - Atlanto-axial instability in Ds (with Dr. Marilyn Bull)
Dr. Marilyn Bull, lead author of the Down Syndrome Healthcare Guidelines, joined the podcast today to discuss the guideline process, hint at the upcoming revised healthcare guideline, and specifically comment on atlanto-axial instability (AAI). For parents/caregivers: Children with Down Syndrome: Health Care Information for Families - HealthyChildren.org For healthcare professionals: Health Supervision for Children With Down Syndrome | American Academy of Pediatrics (aappublications.org)
Jun 17, 2021
#106 - COVID and Mental Health in Ds (with Dr. Ruth Brown)
Dr. Ruth Brown, psychologist from Virginia Commonwealth University, joined the podcast to discuss preliminary data from her study on the psychological impact of the COVID pandemic in people with Ds. If you would like to add to this data set, please consider taking the survey at http://tiny.cc/DSFAM_VCU.
Jun 3, 2021
#105 - Hearts of Joy International
Dr. Vellody was joined by Lauren Costabile, founder of Hearts of Joy International. Listen and learn about the work that this amazing organization is doing to bring hope to children with Down syndrome with congenital heart defects.
May 25, 2021
#104 - Become an Ally for Advocacy (with Jawanda and Rachel Mast)
Dr. Vellody was joined today by Jawanda and Rachel Mast who came to speak about the importance of national level policy and advocacy. They also discussed the National Down Syndrome Congress' Ally for Advocacy campaign, and how we can get involved. https://www.ndsccenter.org/support-get-involved/campaign/
May 18, 2021
#103 - COVID Vaccination in Children with Ds (with Dr. Andrew Nowalk)
In our ongoing goal to keep you up-to-date with the latest changes in the COVID-19 pandemic, Dr. Nowalk joined the podcast again today to discuss COVID vaccination in children with Down syndrome down to 12 years old. Dr. Nowalk also addressed the latest CDC guidelines on vaccinated individuals being mask-free in public settings.
May 14, 2021
#102 - Orthodontic Care (with Dr. Lindsay Schuster)
Listen as Dr. Vellody answers yet another listener question, this time discussing orthodontic care with Dr. Lindsay Schuster. Dr. Lindsay Schuster, DMD, MS - Pittsburgh, PA - Orthodontics and Dentofacial Orthopedics - Book Appointment (upmc.com)
May 7, 2021
#101 - 2021 NDSC Convention (with Sarah Hill)
Dr. Vellody is joined by Sarah Hill who is the Convention Director for the National Down Syndrome Congress. The 2021 NDSC Convention is a one-of-a-kind opportunity for families and self-advocates to get information on Down syndrome. This year's NDSC Convention will be virtual and offer loads of opportunities for attendees that are discussed on this podcast. To learn more or to register for the NDSC Convention, go to https://www.ndsccenter.org/annual-convention/.
Apr 28, 2021
#100 - The 100th Podcast!
Join us as we remember the history of this podcast and hear beautiful music and testimonials shared by our listeners. And take a listen to this song by Troy Griffith. Troy Griffith "Ten by Twelve" Music Video https://youtu.be/vNA4X9d7yT8
Apr 8, 2021
#99 - Education in Ds - Past, Present, and Future (with Ricki Sabia, JD)
Dr. Vellody was joined by NDSC Senior Education Policy Advisor Ricki Sabia to discuss topics surrounding Education in people with Down syndrome. Ricki shared her extensive expertise in this area as well as her personal experiences as a mother navigating the educational landscape. Ricki Sabia | National Down Syndrome Congress (ndsccenter.org) TIES Center Home | TIES Center CAST: Universal Design for Learning CAST: About Universal Design for Learning
Mar 21, 2021
#98 - World Down Syndrome Day Special Interview!
In honor of World Down Syndrome Day, we had some VERY special guests including my brother and parents! Listen in as they discuss their experiences 46 years ago this month and how they compare to today.
Mar 15, 2021
#97 - COVID and DS - Variants, Vaccines, and a New Study in Ds (with Dr. Andrew Nowalk)
Dr. Andrew Nowalk, pediatric infectious diseases specialist at the Children's Hospital of Pittsburgh, joins Dr. Vellody to talk about current topics of variants, vaccines, and a new study in Down syndrome from the T21-RS group. Medical vulnerability of individuals with Down syndrome to severe COVID-19–data from the Trisomy 21 Research Society and the UK ISARIC4C survey (t21rs.org)
Feb 25, 2021
#95 - Feeding in Infants with Down Syndrome
Dr. Vellody was joined by specialists from the Children's Hospital of Pittsburgh Feeding Team to discuss techniques to effectively feed infants with Down syndrome. Many thanks to our guests on the podcast: * Uzma Faisal (Lactation) * Jamie Scheller (Occupational Therapy) * Sheri Rosen (Speech Therapy)
Jan 21, 2021
#93 - Infantile Spasms (with Dr. Nicole Baumer)
Dr. Nicole Baumer joined the podcast again today, this time to discuss a type of seizure called infantile spams that are seen more commonly in people with Down syndrome. For more information and helpful videos, see: Epilepsy Foundation https://www.epilepsy.com/learn/types-epilepsy-syndromes/infantile-spasms-west-syndrome Dr. Baumer's Summary https://www.childrenshospital.org/-/media/Centers-and-Services/Programs/A_E/Down-Syndrome-Program/down-syndrome-infantile-spasms.ashx?la=en&hash=23FA19753FA6A6DA74113DEE2F8B11D9938BDCCD
Jan 14, 2021
#92 - COVID-19 Vaccine in People with Down Syndrome
Dr. Andrew Nowalk from Pediatric Infectious Diseases joined the podcast today for an update on COVID-19 infections in Down syndrome. We discussed the COVID-19 vaccine in general and also specifically in people with Down syndrome. Down Syndrome Medical Interest Group (DSMIG) Statement on COVID-19 Vaccination https://www.dsmig-usa.org/resources/Documents/DSMIG%20COVID%20vaccine%20position%20statement_121720.pdf American College of Obstetrics and Gynecology Statement on COVID-19 Vaccination https://www.acog.org/clinical/clinical-guidance/practice-advisory/articles/2020/12/vaccinating-pregnant-and-lactating-patients-against-covid-19
Jan 4, 2021
#91 - Medical History of Down Syndrome (with Dr. Kristen Ehrenberger, MD, PhD)
Dr. Kristen Ehrenberger, MD, PhD joins us on the podcast today to discuss the medical history of Down syndrome. Dr. Ehrenberger is dually boarded in Internal Medicine and Pediatrics, and she also has a degree in Medical History.
Dec 21, 2020
#90 - Financial Planning Advice and Resources (with Rob Wrubel)
Listen in as Rob Wrubel shares personal and professional advice on financial planning on today's podcast. You can find more information and resources from Rob at his website at http://robwrubel.com.
Dec 10, 2020
#89 - COVID Town Hall (hosted by DSA Pittsburgh)
The Down Syndrome Association of Pittsburgh hosted a virtual town hall to discuss questions related to COVID and Down Syndrome. Dr. Vellody, Dr. Nowalk, and Dr. Freeman were all present to answer questions live.
1 hr 7 min
Nov 20, 2020
#88 - Hot off the Presses! Adult Healthcare Guidelines (with Dr. Peter Bulova)
Dr. Peter Bulova, Director of the Adult Clinic at the Down Syndrome Center of Western Pennsylvania, joins us on the podcast to talk about the recently released Adult Down Syndrome Healthcare Guidelines. https://jamanetwork.com/journals/jama/fullarticle/2771907
Nov 13, 2020
#87 - Down Syndrome Clinic to You - DSC2U (with Dr. Brian Skotko)
Dr. Brian Skotko joined us again as a guest one the podcast to discuss Down Syndrome Clinic to You (DSC2U), a new and innovative way to get personalized healthcare recommendations for your loved one with Down syndrome. Down Syndrome Clinic to You (DSC2U) https://www.dsc2u.org/
Nov 6, 2020
#86 - Learning to Read - Tips & Resources for Success (with Dana Halle).
Today, we were joined by Dana Halle, Co-Founder/Executive Director of the Down Syndrome Foundation of Orange County and Developer and Lead Instructor of The Learning Program and LP Online. We discussed tips and resources for ultimate reading success in people with Down syndrome. LP Online https://www.dsfoc.org/online-courses/ Teaching Reading to Children with Down Syndrome https://www.amazon.com/Teaching-Reading-Children-Down-Syndrome/dp/0933149557/ref=sr_1_3?crid=QYQX8J7DYY6X&dchild=1&keywords=teaching+children+with+down+syndrome+to+read&qid=1604069022&sprefix=teaching+children+with+down+syn%2Caps%2C155&sr=8-3 Down Syndrome Education International RLI https://www.down-syndrome.org/en-us/resources/teaching/rli/
Oct 27, 2020
#85 - Does having Ds lead to higher risk in COVID? (COVID and DS#7, with Dr. Andrew Nowalk)
Dr. Nowalk joined the podcast to give us an update on Down syndrome and COVID. We discuss 2 recently published articles that have gotten a lot of press recently. https://www.nature.com/articles/s41436-020-01004-w https://www.acpjournals.org/doi/10.7326/M20-4986
Oct 8, 2020
#84 - Toilet Training in Down Syndrome (with Dr. Lina Patel, PsyD)
Dr. Lina Patel, psychologist from the Sie Center at Children's Colorado, joined Dr. Vellody on the podcast to talk about toilet training. Dr. Patel is the co-author of the recent book Potty Time for Kids with Down Syndrome: Lose the Diapers, Not Your Patience. https://www.woodbinehouse.com/product/potty-time-for-kids-with-down-syndrome-lose-the-diapers-not-your-patience/
Sep 4, 2020
#83 - A Friend Like Anian (with Meeka Caldwell)
In a continuation of our discussions on Race and Down Syndrome, author Meeka Caldwell joined the podcast today to talk about her experiences as a mother and her children's book "A Friend Like Anian." Amazon Link https://www.amazon.com/Friend-Like-Anian-Meeka-Caldwell/dp/1734334681/ref If you would like an autographed copy of the book from Anian, e-mail your request to firstname.lastname@example.org
Aug 24, 2020
#82 - COVID and DS #6, Return to School, Part 2 (with Dr. Andrew Nowalk)
Friend of the podcast, Dr. Andrew Nowalk, MD, PhD, joined us again for an update on optimizing safety in school re-opening.
Aug 21, 2020
#81 - Updates from the DS Center, Down Syndrome Association (with Erin Kelly and Meredith Peterson)
Erin Kelly (Down Syndrome Center of Western PA Program Coordinator) and Meredith Peterson (Executive Director, Down Syndrome Association of Pittsburgh) joined Dr. Vellody on today's podcast to discuss exciting changes at both organizations. Down Syndrome Association https://www.dsapgh.org/ Buddy Walk Pittsburgh 2020 https://buddywalk.dsapgh.org/ Down Syndrome Center of Western PA www.chp.edu/downsyndrome
Aug 6, 2020
#80 - Autism and Down Syndrome (with Dr. Nicole Baumer)
Dr. Baumer re-joined the podcast to share her pediatric neurodevelopmental expertise in the dual diagnosis of autism and Down syndrome.
Jul 30, 2020
#79 - ADHD and Down Syndrome (with Dr. Nicole Baumer)
Dr. Vellody was joined on the podcast by Dr. Nicole Baumer who is a pediatric neurodevelopment specialist with expertise in ADHD in Down syndrome.
Jul 23, 2020
#78 - Race and Healthcare in People with Down Syndrome #2 (with Kimberly Ewing and Roxanne Hoke-Chandler)
Continuing in our topic of race and healthcare, Dr. Vellody was joined by Kimberly Ewing and Roxanne Hoke-Chandler. NDSC Town Hall Meetings on Race Relations https://www.ndsccenter.org/programs-resources/race-relations/ Facebook Group: African American/Black people who have Children with Down syndrome https://www.facebook.com/groups/ParentsOfAfricanAmWithDs
Jul 16, 2020
#77 - COVID and DS #5 - Thoughts on School Reopening (with Dr. Andrew Nowalk)
Dr. Nowalk joined the podcast again to discuss preliminary thoughts on school reopening this fall.
Jul 6, 2020
#76 - International Adoption and Down Syndrome
Michelle Zoromski, Executive Director, Grants & Operations of Reece's Rainbow, joined Dr. Vellody on this podcast to discuss international adoption in Down syndrome. Reece's Rainbow https://reecesrainbow.org/
Jun 17, 2020
#75 - Is COVID-19 more common in Down syndrome? A review of recent data (with Dr. Andrew Nowalk and Dr. Megan Freeman)
There have been several papers about COVID-19 and Down syndrome released recently that have gotten some media attention. Friend of the podcast, Dr. Andrew Nowalk, and our regional coronavirus expert, Dr. Megan Freeman, join the podcast today to discuss their interpretations of these studies.
Jun 13, 2020
#74 - Race and Healthcare for People with Down Syndrome (with Shauntel Neal-Howe and Valerie Williams)
Shauntel Neal-Howe (Vice President, National Down Syndrome Congress) and Valerie Williams (Secretary, National Down Syndrome Congress) joined Dr. Vellody on the podcast to discuss their experiences with race and healthcare, including their experiences as parents of children with Down syndrome.
Jun 3, 2020
#73 - Stuttering (with Betsy Gilbert, CCC-SLP)
Betsy Gilbert rejoined the podcast to discuss stuttering in people with Down syndrome.
May 15, 2020
#72 - Coronavirus in Ds #3 - Navigating Towards an Eventual Safe Return (with Dr. Andrew Nowalk)
Dr. Nowalk rejoined the podcast today to talk about timely topics such as safely bringing children to medical visits and daycare settings. We also brought a special focus on potential summer vacations and visits with extended family. Dr. Nowalk also provided his perspective on Pediatric Multi-system Inflammatory Syndrome that has been highly discussed recently given its apparent association with COVID in children.
Apr 21, 2020
#71 - Right to Equal Medical Treatment for People with DS (with Heather Sachs, JD)
Dr. Vellody was joined on the podcast today by Heather Sachs, JD, the Policy and Advocacy Director of the National Down Syndrome Congress. They discussed the rights of people with Down syndrome when it comes to obtaining equal medical treatment, particularly during the COVID-19 pandemic. NDSC Policy and Advocacy https://www.ndsccenter.org/political-advocacy/ National Down Syndrome Advocacy Coalition https://www.ndsccenter.org/political-advocacy/national-down-syndrome-advocacy-coalition/ National Down Syndrome Advocacy Coalition Webinar on COVID https://register.gotowebinar.com/recording/27821348694419971 NDSC COVID-19 Resources https://www.ndsccenter.org/programs-resources/covid-19-resources/
Mar 31, 2020
#70 - Coronavirus in Ds #2 - Myths and Truths (with Dr. Andrew Nowalk)
Dr. Nowalk rejoined us on the podcast to go through several myths (and a couple truths) about coronavirus/COVID-19.
Mar 20, 2020
#69 - Best Practices and Resources for Online Education in Ds (with Dr. Sean Smith)
Dr. Sean Smith is a Professor of Special Education at the University of Kansas and is a nationally recognized expert in special education, particularly in the use of technology in educational programming. Given the coronavirus pandemic, many children with Ds are now needing to use online tools that may not be ideal for their learning on their own. Dr. Smith discusses these issues as well as multiple other resources on this podcast. NDSC Webinar Series on Education with Dr. Smith (https://www.ndsccenter.org/outreach-education/parent-webinars/) IXL - https://www.ixl.com/ Study Island = https://www.studyisland.com/ K12 incorporated - https://www.k12.com/ Connections Academy - https://www.connectionsacademy.com/ Pearson Online Learning - https://www.pearson.com/us/prek-12/products-services-teaching/online-blended-learning-solutions/pearson-connexus/online-learning-courses.html Khan Academy - https://www.khanacademy.org/ Starfall.com - https://www.starfall.com/h/
Mar 10, 2020
#68 - Coronavirus (with Dr. Andrew Nowalk)
Since our last episode on respiratory viruses was recorded prior to the arrival of coronavirus (causing COVID 19) in the U.S., Dr. Nowalk graciously agreed to join us to give us the current status of this viral outbreak and what we know about it's potential impact in children with Down syndrome.
Mar 4, 2020
#67 - Preventing Respiratory Illness (with Dr. Andrew Nowalk)
Dr. Andrew Nowalk joins us on the podcast today to discuss general prevention of respiratory illness in children with Down syndrome. This podcast was recorded prior to the COVID-19 spread so the focus is on influenza, RSV, and other viruses. The same general principles will apply in terms of prevention from viruses in general.
Feb 20, 2020
#66 - Dental Topics (with Dr. Brian Martin)
Dr. Brian Martin joined us on the podcast to discuss common pediatric dental issues seen in children with Down syndrome.
Feb 4, 2020
#65 - Speech Apraxia (with Betsy Gilbert, CCC-SLP)
Betsy Gilbert of Therapy Works LLC joined Dr. Vellody on the podcast to discuss speech issues in Down syndrome, particularly speech apraxia. To get more information on speech apraxia and Down syndrome from Libby Kumin and the National Down Syndrome Congress: https://www.ndsccenter.org/wp-content/uploads/Apraxia.pdf To get more information on speech apraxia: https://www.apraxia-kids.org/new-to-apraxia/ To get more information about Therapy Works or to schedule an appointment: https://therapyworksllc.com
Nov 21, 2019
#64 - Sibling Topics (with Sue Levine and Brian Skotko, MD)
Dr. Vellody was joined by the foremost experts in the world regarding sibling topics related to Down syndrome. Ms. Levine and Dr. Skotko have numerous publications and have lead many national workshops on this topic. More information on sibling workshops can be found at: https://siblingslearnaboutdownsyndrome.com/ The study referenced in the podcast can be found at: https://www.ncbi.nlm.nih.gov/pmc/articles/PMC3348944/ Fasten Your Seatbelt Book https://www.woodbinehouse.com/product/fasten-seatbelt-crash-course-syndrome-brothers-sisters/ Fasten Your Seatbelt YouTube Channel https://www.youtube.com/channel/UCwGc9-pY5ACu1t53aIQEKHg NDSC Adult Sibling Toolkit https://www.ndsccenter.org/programs-resources/adult-siblings/ Sibling Leadership Network https://siblingleadership.org/ Sibling Support Project https://www.siblingsupport.org/ Adult Medical Issues Podcast https://www.chp.edu/our-services/down-syndrome/podcasts/adult-related-issued More information on Dr. Skotko and…
Oct 31, 2019
#63 - Research at the NIH (with Melissa Parisi, MD and Lisa Kaeser, JD)
Melissa Parisi and Lisa Kaeser fro the National Institutes of Health joined Dr. Vellody on the podcast today to discuss current research at the NIH. Specifically, they discussed the DS-Connect registry and the INCLUDE research project. Information on both of these studies can be found at: DS-Connect® Registry: http://DSConnect.nih.gov/ The INCLUDE Research Project: https://www.nih.gov/include-project
Oct 8, 2019
#62 - Hematologic (Blood) Issues (with Dr. Kishnani and Dr. Hart)
Dr. Vellody is joined on the podcast by Duke faculty members Dr. Priya Kishnani and Dr. Sarah Hart. Together they discuss the common hematologic (blood) issues seen in Down syndrome and highlight the findings of a very recently published study on anemia in Down syndrome. https://www.ncbi.nlm.nih.gov/pubmed/31417190
Sep 18, 2019
#61 - Stand Up For Downs / Improvaneers (with Rob Snow)
Dr. Vellody is joined on the show by Rob Snow, a stand-up comic whose life was changed by his son. He now has a traveling improv group called The Improvaneers - and all the comedians have Down syndrome. Find out more information at www.standupfordowns.org.
Aug 21, 2019
#60 - Interview with Bryan Gratton (Financial Advising tips, Night to Remember Pittsburgh)
Bryan Gratton joined Dr. Vellody today on the podcast to discuss two of his favorite interests - wholistic financial advising, particularly around people with special needs and the Night to Remember event. Bryan can be reached at: email@example.com 724-513-9654 https://www.grattonkerrfinancialgroup.com/ The National Down Syndrome toolkits can be found at: https://www.ndsccenter.org/programs-resources/family-care-toolkit/ https://www.ndsccenter.org/programs-resources/adult-siblings/ Information on Day/Night to Remember can be found at: https://discovertogether.com/a-day-to-remember https://discovertogether.com/anighttoremember
May 31, 2019
#59 - DSAP - Past, Present, and Future (with Gina Cusano)
Dr. Vellody was joined by Gina Cusano, past president of the Down Syndrome Association of Pittsburgh, to discuss DSAP's history and current endeavors.
May 24, 2019
#58 - Interview on That's Pediatrics Podcast
Dr. Vellody was a guest on the That's Pediatrics Podcast through UPMC Children's Hospital. Dr. Vellody discusses the impact of his brother on his career choice as well as the role of the Down Syndrome Center of Western Pennsylvania. Dr. Vellody also highlights the upcoming NDSC Convention.
Feb 26, 2019
#57 - National Down Syndrome Convention (with David Tolleson and Coleen Popp)
Dr. Vellody is joined today by the Executive Director of the National Down Syndrome Congress, David Tolleson, and the Convention Coordinator and Strategic Initiatives Director, Coleen Popp. They are discussing the National Down Syndrome Congress (http://www.ndsccenter.org) and the upcoming convention in Pittsburgh from June 27-30, 2019 (https://www.ndsccenter.org/annual-convention/).
Sep 17, 2018
#55 - Gross Motor Development, Part 2 (with Pat Winders)
The nationally recognized physical therapy specialist, Pat Winders, joins us for another podcast on gross motor development, this time focused on older children.
Aug 7, 2018
#54 - Gross Motor Development, Part 1 (with Pat Winders)
Pat Winders, world-recognized expert in gross motor skills in children with Down syndrome, joins us on the podcast.
May 3, 2018
#52 - Nutrition Advice, Part 2 (with Joan Medlen)
We were re-joined on the podcast with Joan Medlen, MEd, RD, LD to discuss nutrition advice in Down syndrome, including celiac disease related information. She is the author of the Down Syndrome Nutrition Handbook (https://www.amazon.com/Down-Syndrome-Nutrition-Handbook-Lifestyles/dp/0978611802/ref=sr_1_1?ie=UTF8&qid=1524864643&sr=8-1&keywords=down+syndrome+nutrition).
Apr 27, 2018
#51 - Nutrition Advice, Part 1 (with Joan Medlen)
We are joined on the podcast with Joan Medlen, MEd, RD, LD to discuss general nutrition advice in Down syndrome. She is the author of the Down Syndrome Nutrition Handbook (https://www.amazon.com/Down-Syndrome-Nutrition-Handbook-Lifestyles/dp/0978611802/ref=sr_1_1?ie=UTF8&qid=1524864643&sr=8-1&keywords=down+syndrome+nutrition).
Mar 29, 2018
#50 - Later Childhood Speech, Language, and Communication (with Dr. Libby Kumin)
Dr. Libby Kumin rejoins the podcast to continue the discussion on speech, language, and communication in Down syndrome - this time with a focus on later childhood speech development.
Mar 22, 2018
#49 - Early Speech, Language, and Communication (with Dr. Libby Kumin)
Dr. Libby Kumin joined the podcast today to discuss early communication skills in children with Down syndrome.
Mar 8, 2018
#47 - INSPIRE Study for Sleep Apnea
Drs. Tobey and Simons joined our podcast again to discuss the INSPIRE study that uses a hypoglossal nerve stimulator for sleep apnea.
Mar 1, 2018
#46 - Sleep Apnea (with Dr. Simons and Dr. Tobey)
Today's podcast features Dr. Simons and Dr. Tobey, Ear, Nose, and Throat physicians at the Children's Hospital of Pittsburgh. They joined us to give an update on sleep apnea in Down syndrome.
Feb 22, 2018
#45 - Pediatric Ophthalmology, Keratoconus (with Dr. Ken Nischal)
Dr. Nischal joined us again on the podcast, this time to talk about the corneal cross-linking procedure being done for keratoconus.
Feb 15, 2018
#44 - Pediatric Ophthalmology (with Dr. Ken Nischal)
Dr. Ken Nischal joins us on the podcast today to discuss general eye/vision care issues in Down syndrome.
Dec 29, 2017
#43 - Behavioral Issues in Down Syndrome, Part 2 (with Dr. David Stein)
This podcast is a telephone interview between Dr. Vellody and Dr. David Stein. Dr. Stein is a psychologist who published the very popular book called Supportive Positive Behaviors in Children and Teens with Down Syndrome - The Respond but Don't React Method. In this podcast, Dr. Vellody continues the discussion of common behavioral scenarios that often present in children with Down syndrome.
Dec 22, 2017
#42 - Behavioral Issues in Down Syndrome, Part 1 (with Dr. David Stein)
This podcast is a telephone interview between Dr. Vellody and Dr. David Stein. Dr. Stein is a psychologist who published the very popular book called Supportive Positive Behaviors in Children and Teens with Down Syndrome - The Respond but Don't React Method. In this podcast, Dr. Vellody presents some common behavioral scenarios that often present in children with Down syndrome.
Dec 15, 2017
#41 - Up At Down Country Interview, Part 2 (Delivering diagnosis, medical masqueraders)
Dr. Vellody was invited to be a guest on the Up at Down Country radio show (http://www.upatdowncountry.com). This is Part 2 of the radio interview where Dr. Vellody finishes discussing how best to deliver the diagnosis and also discusses medical issues that masquerade as educational or behavioral issues.
Dec 8, 2017
#40 - Up At Down Country Interview, Part 1 (Prenatal testing, Delivering the Diagnosis)
Dr. Vellody was invited to be a guest on the Up at Down Country radio show (http://www.upatdowncountry.com). This is Part 1 of the radio interview where Dr. Vellody discusses his family, prenatal testing, and how providers should deliver the diagnosis of Down syndrome.
Nov 30, 2017
#39 - Transition from Pediatric to Adult Care with Dr. Andrew McCormick
Mar 24, 2017
#38 - Have a Question - Ask the Doctors! (Teen&Adult)
Drs. Vellody, Bulova, and McCormick along with Sheila Cannon answer questions on teen and adult topics at the NDSC Convention 2016.
1 hr 22 min
Mar 15, 2017
#37 - Have a Question - Ask the Doctor!
Dr. Vellody and Sheila Cannon participated in an informal question and answer session with family members at the National Down Syndrome Congress convention in 2016.
1 hr 19 min
Dec 29, 2015
#32 - Puberty and Sexuality Issues (with Terri Couwenhoven) - Part 2
World reknowned expert on sexuality and puberty issues in people with Down syndrome, Terri Couwenhoven, joins us again for the second part of our discussion.
Nov 24, 2015
#31 - Puberty and Sexuality Issues in Down Syndrome (with Terri Couwenhoven) - Part 1
This podcast focuses on puberty and sexuality issues in Down syndrome. We are joined by Terri Couwenhoven who is the worldwide expert in this topic.
Jul 23, 2014
#29 - Behavioral Issues (Using Time-Out)
Dr. Vellody discusses behavioral issues commonly associated with Down syndrome and the use of time-out as a discipline technique.
Jun 20, 2014
#28 - Adult Related Issues in Down Syndrome
Dr. Bulova joins us today from the Adult Down Syndrome Center to discuss issues that can arise in adults with Down syndrome.
May 5, 2014
#27 - Toilet Training, Part 2
Dr. Vellody continues the topic of Toilet Training in Down syndrome. Today's podcast focuses on problems that can arise during toilet training and ways to address those problems.
Apr 3, 2014
#26 - Toilet Training, Part I
In this podcast, Dr. Vellody discusses assessing for toilet training readiness and general concepts of toilet training
Mar 13, 2014
#24 - Sleep Apnea and Sleep Studies (with Dr. Chakravorty)
Dr. Chakravorty joined the podcast today to discuss sleep apnea and sleep studies.
Feb 3, 2014
#23 - Cardiac Surgery (with Dr. Peter Wearden)
Dr. Peter Wearden joined us on the podcast to discuss heart surgeries.
Jan 2, 2014
#22 - Cardiac Issues in Down Syndrome (with Dr. Linda Russo)
Today's podcast is on Cardiac Issues in Down syndrome. Dr. Vellody was joined by Dr. Linda Russo to discuss this very important topic.
Nov 12, 2013
#21 - Down Syndrome Radio Interview
Dr. Vellody was an invited guest on Down Syndrome Radio in October. Down Syndrome Radio is produced by the Down Right Awesome Dads group, and their radio show can be found on iTunes. Dr. Vellody was asked to share his opinions on a variety of different Ds related (and other!) topics.
1 hr 11 min
Oct 28, 2013
#20 - Endocrine Issues - Diabetes, Obesity, Growth (with Dr. Amanda Flint)
Dr. Amanda Flint joins us again to continue our discussion on Endocrine Issues. This time, the focus is on diabetes, obesity, and growth concerns.
Oct 4, 2013
#19 - Endocrine Issues - Thyroid (with Dr. Amanda Flint)
Dr. Vellody was joined by pediatric endocrinologist Dr. Amanda Flint to discuss hypothyroidism and hyperthyroidism.