Finding Strength: The Spaulding Rehabilitation Podcast
Spaulding Rehabilitation
Subscribe
A monthly podcast that brings together voices in the rehabilitation community. Monthly episodes will be inspired by research conducted out of the Spaulding Research Institute and stories from people with lived experiences. We aim to show how research has real meaning for real people.
Available episodes
Newest first
Oldest first
Sep 13, 2023
Concussion in School Sports
In this episode we discuss concussion education programs for school sports.
Episode Guests:
Daniel Daneshvar, MD, PhD
Dr. Daneshvar conducts research on the long-term effects of moderate-severe traumatic brain injury, concussion, and repetitive head impacts, including chronic traumatic encephalopathy (CTE). Dr. Daneshvar's work has been published in the Journal of the American Medical Association, Annals of Neurology, and Brain, and has been featured broadly including in the New York Times, the Wall Street Journal, NPR, and ESPN. He also founded Team Up Against Concussions, the first scientifically validated concussion education program for kids. He is the Director of the Institute for Brain Research and Innovation at TeachAids, which created CrashCourse: a free, scientifically validated virtual reality and computer-based concussion education program. He received his S.B. from MIT and completed his M.D./Ph.D. at the BU CTE Center. His research resulted in the first dissertation in history to study CTE. He completed residency at Stanford University before joining the faculty at Harvard Medical School.
Esther Lovett
Esther is an analyst at Guidepost Growth Equity. She joins us in this episode because of her experience as an advocate for post-concussion syndrome. As an eighth grader in 2013, she experienced her first concussion while playing soccer. Over the next few years, Esther, who was an avid athlete playing soccer, hockey, and tennis, experienced a total of five diagnosed concussions. She shares her experiences to support others with insights, suggestions, and information on various platforms including her own website, Headstrong.
Episode Resources:
Episode Articles & Related Research
* Athlete Enjoyment of Prior Education Moderates change in Concussion-Reporting Intention after Interactive Education | Inquiry
* Evaluating the Effect of Concussion-Education Programs on Intent to Report Concussion in High School Football | Journal of Athletic Training
* Participating in Two Video Concussion Education Programs Sequentially Improves Concussion-Reporting Intention | Neurotrauma Reports
Advocacy, Education, & Community Organizations
* The Team Up Against Concussions Speech | Concussion Legacy Foundation
* CrashCourse Concussion Education | TeachAids
* Esther Lovett's Post-Concussion Syndrome Blog | Concussion Legacy Foundation
* Headstrong Concussion
* Concussion Story Wall
If you are interested in one of the articles highlighted on the show, but are having trouble accessing it, please reach out to us at SRNOutcomesCenter@partners.org.
Credits
Shonali Gaudino, OT, Host, Producer
Chuck Clough, Editor
This production is a collaboration between, and partially funded by, the Rehabilitation Outcomes Center at Spaulding and our Model Systems: the Boston-Harvard Burn Injury Model System (NIDILRR Award #90DPBU0008), the Spaulding-Harvard Traumatic Brain Injury Model System (NIDILRR Award #90DPTB0027-01-01), and the Spaulding New England Regional Spinal Cord Injury Model System Center (NIDILRR Award #90SIM0017-01-00).
playlist_add
Aug 22, 2023
Equity in Elite Sports: The Paralympian
In this episode, we hear about the state of the science of sports medicine in the elite para-athlete.
Episode Guests:
Cheri Blauwet, MD is an Associate Professor in Physical Medicine and Rehabilitation at Harvard Medical School, the Distinguished Chair in Physical Medicine and Rehabilitation at Brigham and Women’s Hospital, and the Chief Medical Officer of Spaulding Rehabilitation Hospital. She is an attending sports medicine physician at Mass General Brigham, where she also serves as Founding Director of the Kelley Adaptive Sports Research Institute. Dr. Blauwet is also a former Paralympic athlete in the sport of wheelchair racing, competing for the United States Team in three Paralympic Games (Sydney '00, Athens '04, Beijing '08) and bringing home a total of seven Paralympic medals. She is also a two-time winner of both the Boston and New York City Marathons.
Professor Wayne Derman is the Executive Head of the Department of Exercise, Sport and Lifestyle Medicine, as well as the Head of Division: Institute of Sport and Exercise Medicine (ISEM) at Stellenbosch University. He is currently a Co-director of the IOC Research Centre in South Africa and heads up one of two FIFA Medical Centres of Excellence in Africa. His research focuses on secondary prevention of chronic diseases of lifestyle, and injury and illness prevention in athletes including those with disabilities.
Episode Resources:
Episode Articles & Related Research
* Consensus statement on concussion in sport: the 6th International Conference on Concussion in Sport-Amsterdam, October 2022
* Shoulder Pain, Function, and Ultrasound-Determined Structure in Elite Wheelchair-Using Para Athletes | Medicine & Science in Sports & Exercise
* Para sport translation of the IOC consensus on recording and reporting of data for injury and illness in sport | British Journal of Sports Medicine
* Kelley Institute for Adaptive Sports Research | Spaulding Rehabilitation Network
Advocacy, Education, & Community Organizations
* International Paralympic Committee
News & Services
* USA goalball makes incredible comeback | NBC Sports
If you are interested in one of the articles highlighted on the show, but are having trouble accessing it, please reach out to us at SRNOutcomesCenter@partners.org.
Credits
Shonali Gaudino, OT, Host, Producer
Chuck Clough, Editor
This production is a collaboration between, and partially funded by, the Rehabilitation Outcomes Center at Spaulding and our Model Systems: the Boston-Harvard Burn Injury Model System (NIDILRR Award #90DPBU0008), the Spaulding-Harvard Traumatic Brain Injury Model System (NIDILRR Award #90DPTB0027-01-01), and the Spaulding New England Regional Spinal Cord Injury Model System Center (NIDILRR Award #90SIM0017-01-00).
playlist_add
Jun 29, 2023
More Than Just a Game: The Public Health Impact of Sport and Physical Activity for People with Disabilities
Episode Description
In this episode we discuss the benefits and barriers to fitness in people with disabilities, inspired by the article More Than Just a Game: The Public Health Impact of Sport and Physical Activity for People With Disabilities.
Episode Guests
Cheri Blauwet, MD
Cheri Blauwet is an Associate Professor in Physical Medicine and Rehabilitation at Harvard Medical School, the Distinguished Chair in Physical Medicine and Rehabilitation at Brigham and Women’s Hospital, and the Chief Medical Officer of Spaulding Rehabilitation Hospital. She is an attending sports medicine physician at Mass General Brigham, where she also serves as Founding Director of the Kelley Adaptive Sports Research Institute. Dr. Blauwet is also a former Paralympic athlete in the sport of wheelchair racing, competing for the United States Team in three Paralympic Games (Sydney '00, Athens '04, Beijing '08) and bringing home a total of seven Paralympic medals. She is also a two-time winner of both the Boston and New York City Marathons.
Saul Fisher
On June 10th, 2018, Saul Fisher was about a mile from his home halfway through his 25-mile bike workout when he was hit by a car and his life changed in an instant. He states:
Kathleen Salas, PT, MHA
Kathleen Comfort Salas is a physical therapist with extensive experience working with clients with neurologic impairments. She began blending adaptive sports with her rehabilitation approach 30 years ago. In 2009 she led the expansion of Spaulding Adaptive Sports programs from Boston to the North Shore, where she ran programs until becoming the full time Boston Coordinator of Spaulding Adaptive Sports Centers in 2021. Kathleen promotes the power of sport to enhance rehabilitation and achieve recreation goals, and empowerment for people with disabilities in all areas of their lives.
Episode Resources
Episode Articles & Related Research
* More Than Just a Game: The Public Health Impact of Sport and Physical Activity for People With Disabilities (The 2017 DeLisa Lecture) | American Journal of Physical Medicine & Rehabilitation
* Functional and environmental factors are associated with sustained participation in adaptive sports | PM&R
* Participant-reported benefits of involvement in an adaptive sports program: a qualitative study | PM&R
* Developing a Virtual Adaptive Sports Program in Response to the COVID-19 Pandemic | PM&R
Advocacy, Education, & Community Organizations
* Move United: A nonprofit with a mission to ensure everyone, regardless of ability, experiences the life-changing power of sport and is included in their community
* Global Sports Mentoring Program: Sport for Community (S4C), uses an immersive mentorship and cultural exchange model to focus on empowering people with disabilities through community-based sports initiatives
* Commit to Inclusion: A global campaign to end the exclusion of people with disability from physical activity and all associated areas
* National Center on Health, Physical Activity and Disability (NCHPAD): A CDC-funded public health practice and resource center on health promotion for people with disability
* ADA Checklists for Existing Facilities
* Other health resources mentioned in the article: Healthy People 2020, NFL Play 60, Exercise is Medicine
News & Services
* Spaulding Adaptive Sports Centers Website: View the calendar and register as a participant or volunteer
* SASC Stories of Strength: “Stories of Strength” highlight the power of early exposure to sport during rehabilitation
* 3-min video overview of SASC programs
* New England Healing Sports Association
* Vermont Adaptive Ski & Sports
* Windrush Farm: Therapeutic Equitation
* NESN Sports Spotlight: Spaulding Adaptive Sports Ski Program
* NESN Sports Spotlight: Spaulding's ExPD Program
playlist_add
Jun 5, 2023
No Easy Game: An Intensive Comprehensive Aphasia Program’s First Five Years
Episode Description: In this episode, we talk about aphasia, the Spaulding-MGH Institute of Health Professions ICAP program, and the story of program participant Dana Lanzillo and his wife Jane. Stories are based on the article Outcomes of an interprofessional intensive comprehensive aphasia program’s first five years.
Episode Guests:
Esther Ayuk, MS, CCC-SLP, CBIS is an Instructor in the Department of Communication Sciences and Disorders and Coordinator and Clinical Supervisor of the Aphasia Center at the MGH Institute of Health Professions. She is a certified brain injury specialist and has worked as a speech-language pathologist at Spaulding Rehabilitation since 2017. Her clinical research is focused on the standardized assessment of language and cognition across the continuum of care and the role of this information in predicting patient outcomes and influencing health-related quality of life.
Randie Black Schaffer, MD, MA is a physiatrist specializing in Stroke Rehabilitation. She founded the first Young Adult Stroke Rehabilitation Program in the country, which has been widely copied regionally and nationally. At Spaulding she started the Young Adult Stroke Service, she directs the SRH Inpatient Stroke Program and serves as Chief of the Division of Stroke and Neurology of the Dept. of Physical Medicine and Rehabilitation of Harvard Medical School.
Lynne Brady Wagner, MA, CCC-SLP, MRMC, HEC-C serves as the Chief Learning and Diversity, Equity and Inclusion Officer, Chair of the Ethics Advisory Committee and Associate Director of the Spaulding Stroke Wellness Institute at the Spaulding Rehabilitation Network. In her 25 years at SRN, she has fulfilled many roles including speech-language pathologist, Director of the Stroke Rehabilitation Program, and Director of the Clinical Scholars Program.
Mary Hildebrand , OTD, OTR/L is an associate professor and Director of the Tabor-Connor Family Occupational Therapy Center for Learning, Participation, and Rehabilitation (OT CLiPR) at the MGH Institute of Health Professions.
Dana Lanzillo and his wife Jane were participants in the the S-IHP’s CAP program (twice!)
Marjorie Nicholas, PhD, CCC-SLP, FASHA is Chair of the Department of Communication Sciences and Disorders at the MGH Institute of Health Professions and is a professor specializing in adult neurogenic communication disorders. She founded the MGH Institute's onsite Aphasia Center, which provides diagnostic and treatment services to adults with aphasia and related communication impairments. The Aphasia Center operates on the Life Participation Approach to Aphasia (LPAA) model. Prior to joining the MGH Institute, she was a speech-language pathologist for over 15 years at the VA Boston Healthcare System. Dr. Nicholas became a Fellow of the American Speech-Language-Hearing Association (FASHA) in 2017.
Episode Resources:
Episode Articles & Related Research
Outcomes of an interprofessional intensive comprehensive aphasia program’s first five years | Topics in Stroke Rehabilitation
Advocacy, Education, & Community Organizations
S-IHP's CAP Intensive Aphasia Program | MGH IHP
playlist_add
May 1, 2023
Measuring Function After Spinal Cord Injury: The SCI-FI
In this episode, we discuss the development and use of a tool that measures function after spinal cord injury: the Spinal Cord Injury Functional Index (SCI-FI) / Assistive Technology (AT).
Episode Guests:
David Estrada, JD, represents United Spinal Association as a peer mentor, board member, and former executive director of its Greater Boston chapter as well as a national chapter liaison. He is a program manager at the Spaulding New England Regional Spinal Cord Injury Model System and the Exercise for Persons with Disabilities Program. Living with a spinal cord injury and wheelchair user for the past 27 years, he has focused on consumer-led advocacy locally and nationally to promote high quality services for better healthcare management and access to resources for the SCI community. For nearly a decade, Dave was an Athletes with Disabilities Coordinator for the Boston Marathon and continues to promote adaptive sports participation.
Alan Jette, PT, PhD, MPH, FAPTA currently serves as Editor-in-Chief of the journal PTJ and is Professor & Dean emeritus at Boston University. His scholarship focuses on evaluation of rehabilitation outcomes, the measurement of function, and the prevention and treatment of disability. He served as Dean of Boston University’s Sargent College of Health and Rehabilitation Sciences from 1996-2004, was Professor of Health Policy & Management at the Boston University School of Public Health from 2005-2017, and Professor of Rehabilitation Sciences at the MGH Institute of Health Professions from 2012 to 2021. In 2013, Dr. Jette was elected to the National Academy of Medicine, formerly the Institute of Medicine.
Sarah Skeels, BS, MPH has a B.S. in Exercise Physiology from the University of Virginia where she focused in adaptive exercise, and a Master’s Degree in Public Health from George Washington University, where she focused on Health Promotion and Disability. Sarah is a consultant on numerous research projects that involve people with SCI, a member of the Community Advisory Board with the Spaulding New England Regional Spinal Cord Injury Center; Lecturer in the Department of Occupational Therapy at Tufts University; and Senior Teaching Associate in Behavioral and Social Sciences in the School of Public Health and Brown University. Sarah serves on numerous boards of non-profit adaptive sports organizations and is a Commissioner on the RI Governor’s Commission for People with Disabilities. Sarah is a person with an SCI as a result of a bicycle accident 33 years ago, and is an adaptive snowsports instructor, a former Paralympic-level sailor, an avid outdoorswoman and most importantly, a mom.
Episode Resources:
Episode Articles & Related Research
* Development and initial evaluation of the SCI-FI/AT
* Overview of the Spinal Cord Injury-Functional Index (SCI-FI): Structure and Recent Advances - Archives of Physical Medicine and Rehabilitation
News & Services
* AccessNow App
playlist_add
Mar 29, 2023
Recovery After Moderate to Severe Brain Injury
In this episode, we discuss our ability to predict outcomes after moderate to severe brain injury.
Episode Guests:
Dr. Joseph T. Giacino, PhD is a neuropsychologist at Spaulding Rehabilitation and Massachusetts General Hospital in Boston Massachusetts. At Spaulding, he directs the Rehabilitation Neuropsychology Service, Disorders of Consciousness Program and Neurorehabilitation Laboratory. At Harvard Medical School, he is a professor of Physical Medicine and Rehabilitation and teaches neuroethics at the Center for Bioethics. He is adjunct professor in the Rehabilitation Sciences Doctoral Program at the MGH Institute of Health Professions. His work focuses on developing more precise assessment methods and effective treatment interventions for individuals with severe brain injury. He serves as the director of the Spaulding-Harvard Traumatic Brain Injury Model System.
Nicole Godaire is chief executive officer of the Brain Injury Association of Massachusetts (BIA-MA) and has been with BIA-MA since 2005. Nicole’s passion is advocating for the brain injury community, improving access to more programs and services for individuals with brain injury and caregivers in the Commonwealth of Massachusetts. Nicole’s relationships within the provider community have made it possible for BIA-MA to increase brain injury awareness and close gaps in services across the state.
Tracey Macarty is mother to Will Emery, who lived with a traumatic brain injury until his passing in 2018. Will was an avid car enthusiast, always tinkering with his numerous vehicles. He loved playing drums with his band Arm the Hopeless. Above all, he loved his family and friends and you never walked away without a smile on your face. He guided his mother through the most harrowing time of her life, giving her life purpose. He always made sure he told her, "I love you more." Tracey was a staunch advocate for her son and hopes to continue spreading awareness and compassion for people experiencing traumatic brain injuries.
Episode Resources
Episode Articles & Related Research
* Functional Outcomes Over the First Year After Moderate to Severe Traumatic Brain Injury in the Prospective, Longitudinal TRACK-TBI Study
* Recovery of Consciousness and Functional Outcome in Moderate and Severe Traumatic Brain Injury
* Traumatic Brain Injury: What Is a Favorable Outcome?
* Spaulding-Harvard Traumatic Brain Injury Model System
Advocacy, Education & Community Resources
* Welcome to BIA-MA Living with Traumatic Brain Injury (TBI) | MSKTC
playlist_add
Mar 13, 2023
From Survival to Survivorship, Part II
Join us for our special 2-part kickoff series inspired by the New England Journal of Medicine article “From Survival to Survivorship – Framing Traumatic Injury as a Chronic Condition.” In this episode, we discuss finding common language in our data.
Episode Guests
David Estrada, JD, represents United Spinal Association as a peer mentor, board member, and former executive director of its Greater Boston chapter as well as a national chapter liaison. He is a program manager at the Spaulding New England Regional Spinal Cord Injury Model System and the Exercise for Persons with Disabilities Program. Living with a spinal cord injury and wheelchair user for the past 27 years, he has focused on consumer-led advocacy locally and nationally to promote high quality services for better healthcare management and access to resources for the SCI community. For nearly a decade, Dave was an Athletes with Disabilities Coordinator for the Boston Marathon and continues to promote adaptive sports participation.
Dr. Juan Herrera-Escobar, MD, MPH, is a physician scientist from Colombia with advanced training in trauma outcomes research methodology. Dr. Herrera-Escobar serves as Research Director in Long Term Outcomes in Trauma at Brigham & Women’s Center for Surgery and Public Health. His academic interests are in studying the long-term physical, mental, and social health consequences of traumatic injuries, as well as in the implementation of trauma registries and trauma systems design. His work has led to several publications on the long-term impact of traumatic injuries and the factors associated with poor outcomes, emphasizing the role of patient and socioeconomic factors in recovery.
Episode Resources
Articles & Related Research
* From Survival to Survivorship — Framing Traumatic Injury as a Chronic Condition | NEJM
* Stepping Strong Center for Trauma Innovation
* Spaulding New England Regional Spinal Cord Injury Center
* Mental Health Evaluation for Non-English Speaking Survivors of Traumatic Injury
Advocacy, Education & Community Organizations
* United Spinal Association
* Greater Boston Chapter of the United Spinal Association
* Disabilities Commission, City of Boston
* National Rehabilitation Information Center
* How to Become a Mentor: Mass Mentors
News & Services
* Traumatic Spinal Cord Injury Facts and Figures
* Lee Park, MD Q&A: Bridging the Digital Divide
* How to Embed a Disability Economic Justice Policy Framework in Domestic Policy Making
playlist_add
Mar 6, 2023
From Survival to Survivorship – Framing Traumatic Injury as a Chronic Condition, Part I
Join us for our special 2-part kickoff series inspired by the New England Journal of Medicine article “From Survival to Survivorship – Framing Traumatic Injury as a Chronic Condition.” In this episode, we discuss coordinated care across the lifespan of those with traumatic injuries.
Episode Guests:
Dr. Jeffrey Schneider is the medical director of Trauma and Burn Rehabilitation at Spaulding Rehabilitation and associate professor of Physical Medicine and Rehabilitation at Harvard Medical School. He serves as project director of the Boston Harvard Burn Injury Model System, a multi-institutional center grant focused on long-term outcomes in the burn population. His interests also include utilizing large data to explore rehabilitation outcomes and he is the co-Director of the Rehabilitation Outcomes Center at Spaulding.
Diana Tenney is a burn survivor who sustained a burn injury to over 90% of her body 13 years ago. She has completed well over 1000 peer support visits and speaks locally and nationally about her experience as a burn survivor. Diana currently serves as Co-Director of Knowledge Translation for the Boston-Harvard Burn Injury Model System. She is past-President and Board member of BSONE, the Burn Survivors of New England, Co-Director of the Diana Tenney Burn Research Fund, and a member of the Spaulding Council on Disability Awareness. Episode Article & Related Research
* From Survival to Survivorship — Framing Traumatic Injury as a Chronic Condition | NEJM
* Boston-Harvard Burn Injury Model System
* Life Impact Burn Recovery Evaluation (LIBRE) Profile Advocacy, Education, & Community Organizations
* Burn Survivors of New England
* Phoenix Society for Burn Survivors
* World Burn Congress
* Face Equality International
Judy Heumann
* Judy Heumann’s Website
* Judy’s Book: Being Heumann – An Unrepentant Memoir of a Disability Rights Activist
* Watch ‘Crip Camp: A Disability Revolution’ on Netflix
* Judy’s TED Talk: Our fight for disability rights – and why we’re not done yet
playlist_add
Feb 14, 2023
Finding Strength: The Trailer
2-minute introduction to the podcast.
playlist_add