How to tell your family about SYNGAP1
Play • 10 min

How to tell your family about SYNGAP1

As you process your loved ones’ recent SYNGAP diagnosis, when do you tell your family?  How?

When?  As soon as you can!

How, well that’s what we talk about today:

  1. This is a big deal, let’s not minimize it.
  2. I need you help
    1. Learn with me
    2. Fight insurance with me
    3. Help me rearrange my life
    4. Help with my SYNGAPian or their siblings
    5. Jump into my life, don’t give me space
  3. Raise funds with me to help bring therapies and cure closer to reality

- Raise funds at https://syngap.fund/give

- Sign up for this 10 minute #podcast #SYNGAP10 here https://syngap.fund/10 if you want a direct link for Apple: https://syngap.fund/10a

Episode 42 of #Syngap10 - January 7, 2022

#family #thetalk #F78A1 #Syngap #Syngap1 #epilepsy #autism #intellectualdisability #id #raredisease #epilepsyawareness #autismawareness #rarediseaseresearch #SynGAPResearchFund #CareAboutRare #PatientAdvocacy #GCchat #Neurology #Genetics

--- Send in a voice message: https://anchor.fm/syngap10/message
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