This is the Gospel Podcast - BONUS: Sneak Peek of The Sunday on Monday Study Group

Mar 29, 2021

We Are All Connected

Stories in this episode: Julie, Whitney, & Brooke each have a story to tell about the struggle and surprises of a life lived in pursuit of discipleship, but they can't tell their story without one another and they can't tell their story without the extraordinary life of Jonah, the little boy who brought them all together. Get more info and shownotes at LDSLiving.com/thisisthegospel or find us on Instagram and Facebook @thisisthegospel_podcast TRANSCRIPT KaRyn 0:03 Welcome to "This Is the Gospel," an LDS Living podcast where we feature real stories from real people who are practicing and living their faith every day. I'm your host, KaRyn Lay. I kind of feel like today's theme doesn't need much of an introduction at all. So I'm going to keep this short and sweet. Because if there is one principle of the gospel that we all understand just a little bit better after a full year of social and physical distance, it's the power and purpose of human connection and just how inextricable that connection is, to our spiritual practice. And have we got a story about connection for you. Actually, it's one big story with two little stories in the middle. And it's kind of hard to explain, but I think it's going to become clear soon enough. First, we'll start with our storyteller Julie, then you're going to hear from Whitney, and then Julie again, and then Brooke, and then back to Julie, and then Brooke and then Julie. And just a quick note for sensitive listeners that this story does involve some trauma related to loss. Here's Julie: Julie 1:07 Our first son Jonah came into the world 10 days late. It was my first baby and I had all these ideals about what his birth would be like, and my whole pregnancy had been so good, and I had felt so healthy and strong. And all of our ultrasounds that we had were fine. We never had any indication that there would be any problem or any challenges for our baby. It was just this beautiful experience to be pregnant and to feel him move inside me. I was sure that I was just gonna let him come on his own terms. And 10 days after his due date, my doctor said, "No, we need to induce you." That day was so exciting. The birth was good, but when he was finally born, the doctor put him up on my belly. And when I first looked at him, I could tell right away that something wasn't quite right. And I didn't get very much time with them because they whisked him off my belly. And all of a sudden there was this flurry of activity around us and the respiratory therapists came in and they took Jonah and kind of moved him away from me. And I remember my mom coming over and comforting me and I just didn't even know what was happening. I just said remembered seeing his little ears. They looked almost like little flower petals that hadn't quite opened all the way. My husband Jordan was over by the nurses and he was kind of watching what was going on, and he came over to me and I remember him saying, "Julie, he has the most beautiful lips." And I think he was in this moment of trying to process, you know, what we were experiencing. But it turned out that he had a lot of problems with his facial structures. He had a cleft palate, his jaw was underdeveloped, his cheekbones were underdeveloped, and his ears were not fully open, like they had just started to develop and stopped midway through that development. We didn't know what caused it or whether he'd be able to see or whether he'd be able to hear. We didn't know if he would have any kind of mental delays, but we loved him so instantly. And it wasn't until the next morning after a night of changing diapers and trying to figure out how to feed him that our doctor came in and told us what his diagnosis was. He told us about Treacher Collins syndrome, which is a syndrome that affects the facial structures and development of the face. And the other thing the doctor told me is, "I'm almost 100% sure that you are the carrier of this genetic disorder." It was good to know what he had because we knew that he would be able to see and he wouldn't be able to hear with the help of a hearing aid, we knew that he wouldn't have any kind of developmental challenges. But I had this place in my heart that just hurt so bad because I knew that I had carried this, you know, thing that was inside me that had . . . that wasn't my fault. But I felt the strange responsibility for being the carrier of that gene. And almost the immediate realization too, that any children that we tried to have in the future would have a 50% chance of having the same experience that our sweet Jonah was having. We knew that he was going to face a lifetime of surgeries to correct some of those things that he had to deal with, and it was all so overwhelming. And I tried to put on a brave face and I tried to be really present and to be optimistic. But as soon as I could get up and I got into the shower–that's where I just fell apart. I just prayed that Heavenly Father would help me to know how to move forward. And the distinct impression that I received was that Jonah deserved to have a joyful mom. And that there was a lot that we didn't know, and there was a lot that I couldn't control. But I could control how I approach the experience of being this mom. And so that's what I tried to do. After a while, we just didn't think about his syndrome very much. We were just normal parents, and just raising this little boy and that was beautiful. People just were attracted to him and they wanted to know about him. And my husband and I are, well, especially my husband, we're kind of private, you know, we're not the kind that really reach out, but with Jonah, people just came to us. And it was a heart opening experience to watch how people just loved him right away. But there was also a realization that people could be cruel. As he got older, we had more experiences of people stopping and staring or children saying things that were hard, and he was young enough, that didn't really affect him, but you know, we wondered how that would affect him as he got older. That was a challenge. When Jonah was 14 months old, my friend had invited us over, she wanted to can spaghetti sauce, and our kids would play together while we made the spaghetti sauce. That morning, I had felt this hesitation that I couldn't put my finger on, but for some reason, I just didn't really want to go. And she was my dear friend and I love spending time with her and I couldn't understand why I wouldn't want to get out of the house and go there. But we went, and Jonah played with her kids and we made our spaghetti sauce. After a couple hours, she needed to go and pick up her oldest daughter. And I said, "Okay, that's fine. I'll watch the kids." And we were in the backyard playing. And almost immediately after she walked out the door, the kids had been eating snacks and Jonah ate a fruit snack. I could tell right away that something was wrong. I could see it in his eyes that he couldn't get any air. And I knew that he was choking. And I was holding my friend's new baby and I have these children around me and I looked around and there was a blanket on the ground. So I put the baby down and I scooped Jonah up and I tried to do the Heimlich maneuver and tried to you know, pound this fruit snack out. It wasn't working and I could feel his body just go limp in my arms. You know, I started to panic. And I grabbed my phone and I grabbed him and I knew I just went to the front of the house because I thought if I can get out there someone can help me. And I left all these kids in this baby in the backyard and ran to the front of the house and laid him out on the driveway and called 911. They did their best to help me and I was doing everything I knew how to do to help him. You know, I don't think it was very long before the ambulance got there. But just as I looked at him, I had the strongest confirmation I think I've ever had in my life, and…

1 hr 2 min